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verysweatybetty

ETS question

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I have recently been considering surgery for my sweating. I have primary generalised hyperhidrosis and sweat from my scalp to my feet. My dr says I'm a severe case.

The way I see it, I can't possibly get any wetter (from CS) but at least my head, hair and face would be normal for the first time in my life.

I've been reading up about ETS and asking around on different forums but the feedback I've been getting is really putting me off. One woman I have been chatting to was determined to have the surgery for her palmar HH, she had her operation back in June - by August she had developed CS on her back and legs. It's not just that though, someone else I know has now developed terminal cancer - whether it's related or not I don't know. The worst statistics I've found is that ETS only helps 5% of people. The research I've been doing pretty much underpins that statistic.

I really just don't know what to do :?

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I have recently been considering surgery for my sweating. I have primary generalised hyperhidrosis and sweat from my scalp to my feet. My dr says I'm a severe case.

The way I see it, I can't possibly get any wetter (from CS) but at least my head, hair and face would be normal for the first time in my life.

I've been reading up about ETS and asking around on different forums but the feedback I've been getting is really putting me off. One woman I have been chatting to was determined to have the surgery for her palmar HH, she had her operation back in June - by August she had developed CS on her back and legs. It's not just that though, someone else I know has now developed terminal cancer - whether it's related or not I don't know. The worst statistics I've found is that ETS only helps 5% of people. The research I've been doing pretty much underpins that statistic.

I really just don't know what to do :?

Don't do it - it will mess up your system, your ability to lose heat, it's a barbaric surgery which should be banned in my opinion.

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I feel that way about ETS being barbaric too, tbh. I go through stages where I feel desperate enough to think this is going to be with me for the rest of my life, no matter what happens - how could it get any worse?

I know there are all sorts of non-sweating ETS related side effects I should be considering - it's all down to desperation.

I literally sweat from every pore in my body. I don't get a small amount of sweat either - I could sweep my kitchen floor for two minutes and spend the next half an hour literally pouring. I tried on a pair of shoes in a shoe-shop a couple of months back - I had to dump the shoes and get out of there because when I bent down to fasten the shoes, I left a big sweaty puddle on the floor and drips all over the shoes where the sweat was pouring from my face. I couldn't have got any wetter if I'd just fallen in a swimming pool fully clothed.

Normally I'm calm, collected, pragmatic etc but sometimes I just want to scream.

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I feel that way about ETS being barbaric too, tbh. I go through stages where I feel desperate enough to think this is going to be with me for the rest of my life, no matter what happens - how could it get any worse?

I know there are all sorts of non-sweating ETS related side effects I should be considering - it's all down to desperation.

I literally sweat from every pore in my body. I don't get a small amount of sweat either - I could sweep my kitchen floor for two minutes and spend the next half an hour literally pouring. I tried on a pair of shoes in a shoe-shop a couple of months back - I had to dump the shoes and get out of there because when I bent down to fasten the shoes, I left a big sweaty puddle on the floor and drips all over the shoes where the sweat was pouring from my face. I couldn't have got any wetter if I'd just fallen in a swimming pool fully clothed.

Normally I'm calm, collected, pragmatic etc but sometimes I just want to scream.

Oh right. :( Well I know it may seem like your only option but please don't rush into it (obviously I would stay clear full-stop but it's just my view).

I thought 12 years ago that things couldn't get any worse then dripping hands and feet - this is much, much worse. ETS can affect your ability to exercise, do all kinds of activities, keep cool in summer, the side-effects just aren't worth it in my opinion.

Have you tried all the non-surgical approaches like prescription-strength anti-perspirants, herbal remedies (e.g. sage), glycopyrrolate wipes, etc?

Keep faith and don't give up.

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Thank you for your reply - I had a serious wobble there. I don't think I would ever be brave enough to go through with ETS - although I have been unpredictable in the past and shot myself in the foot over other things.

I personally think ETS should be at least reviewed by the medical profession - it's created so many problems and ruined so many lives that there is plenty of basis for something sensible to happen. I also think that once it's been reviewed, if it's not banned (as it is in Sweden) then the instances of people having the surgery would be bare minimum.

I really don't know why it's not been reviewed already, considering only 5% of people have a good positive experience with ETS. Although hat is obviously without the ability or benefit of looking into any resultant health complications in the future.

It shows you how desperate I felt when I started this thread :?

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You better know first about ETS before you are going to undergo that surgery.. because As I've heard ETS have many disclaimer about this..and the side effects are very bad..

At first it really works but after the time goes by side effects will start to come.. We have the same problem but It never comes to my mind to undergo surgery like that..

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Hi Omiegat

You're quite right, I am fully aware of the horrors that will accompany ETS. I've run a hyperhidrosis support website (I'm not sure if I can leave a link but I've spotted the tags for URL so I'll chance it) for many years and the amount of people who have suffered worse as a result of the surgery is tragic.

Sometimes I don't stop sweating - I always sweat from my scalp to my feet and everywhere in between and don't have a dry spot on my body. What was going through my mind the day I posted about it is it's already as bad as it could get, surely, and could ETS really make it worse?

I am not going to find out. The logical answer is yes, it could get a lot worse, and I know it would, 100%. Whilst I have times that I'm feeling almost 'normal' - my hormones are stable, it's a cool day with no humidity, I'm not doing anything strenuous, my sugar levels are stable etc - I know I wouldn't get any of those times because of the way the body works after the surgery. And there's no guarantee that anything above the nipple line wouldn't sweat.

There's also the general worry about what might happen in other areas of my body once the nerves had been cut. Nobody knows the long-term implications. There must be a reason for these nerves to be attached to major organs (ie the heart) etc. The human body is too well designed for it not to matter.

There's a lot of information online, you just need to Google Corposcindosis. It's the most comprehensive study ever carried out on ETS and it's beginning to sink into the medical profession now - Sweden banned it some years ago (ironic as they perfected the technique) and now I understand it's also been banned in Pakistan.

Fingers crossed the rest of the world will follow.

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I had ETS done in Toronto in 2001 at age 19 for severe facial blushing. 

As Befree alluded to, I am one of the silent success stories but have recently felt the urge to revisit the community.

Anybody—please feel free to contact me about ETS. Happy to provide details of my experience. 

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