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Found 9 results

  1. Hi! This is still working: http://esfbchannel.invisionzone.com/index.php?/topic/4063-tablet-cures-blushing/ I have gave a speach at a wedding, sat around a table holding conversation and more! This seems to wierdly work! - just go to your docs and say you're hearing voices and you've done some research, can you go on Olanzapine lol. Well, worth a shot incase you can think of another way to obtain Olanzapine. I hope someone can try it and let us all know! Thanks, James.
  2. Dear everyone, I am not sure if my personal story is a very interesting read, since it is so similar to every other story in here. Nevertheless, it might be some who wants to read it, so I will sum it up very shortly in this post. For you who want to skip to my questions, I will post them in the last paragraph. My story - explained very shortly and simply Facial blushing (FB) started as problem for me when I was around 13-14 years old. I have always done well in school, but now presentations, group work or just raising the hand asking a question became a very painful experience. Going bright red, feeling the cheeks getting intensely warm and having stairs and comments from fellow students. I tried different solutions (nothing really helped, see paragraph below) so I started having suicidal thoughts when I was about 16 years old, because I didn´t feel I could be myself in this life and there were no cure for it. Was scheduled to have ETS when I was around 17, but cancelled before I had it, because the fear of the side effects. Had therapy instead. It is now 16 years since the problem started. It is not as bad as when I was 16, I am coping with the problem, but I am certainly not living life. I am far from where I could be in my professional life, and when it comes the social life it is practically non-existent (Dating isn´t an option and keeping meaningful friendship isn´t the easiest when you really want to have them being yourself, but at the same time trying to avoid different social situations because of the problem). Some of the things I have tried (none of them have been really successful) - Therapy - Hypnotherapy - Lasers * IPL laser didn´t work at all. But after about 5-6 treatments with the PDL (pulsed dye laser) Vbeam, the redness has been reduced about 20-25 %. Especially when flushing, like being outside in a cold weather and then going inside. - Beta-blockers * This I have found to be the best temporary solution available today. It doesn´t remove the blushing, but makes it much easier. I take them in situations I have to be in (like meetings at work), when I know I am going to blush. I take them 1 hour before, but I always get very tired for the rest of the day. - Being careless/not giving a f@ck. * It has somewhat helped, a long with therapy and coaching, in my everyday life. Focusing on what I want in life, vs what other people think, focusing on what is good about myself vs what is bad, etc. However, in FB-situations I have found it impossible to just focus on being careless. The sympathetic nervous system takes over and that you have no control over. - Different creams and cover-ups - Getting a tan - Growing a beard - Working out very intensely, eating healthy, meditate, etc. Different thoughts and experiences: I have read through tons of forums and webpages (this one and others) and spoken to different surgeons and doctors. I am amazed by how few good solutions todays medicine has to offer FB-people. Take Sweden for example. This is the country who invented the ETS-surgery, so they clearly acknowledge that it is a big problem for people in the society. Because of the side effects they have banned the surgery. But, the problem is still there! I can not believe that they let people just have the problem, and not putting money and energy in to finding better cures! The closest I have come to reading about alternative solutions are: 1) Stellate Ganglion Block. This is fluid being injected in the neck-area, and is supposed to paralyze the same nerve as you destroy in the ETS-surgery. However because of where you have to inject, you do it at the T1-level, which very often gives you Horners Syndrom. As I understand it the effects also only last for a couple of hours, which doesn´t make it a possible cure. 2) Botox. I have read that they tested this for FB in Great Britain around year 2008, but I am yet to hear about any successful results from it. It has become somewhat a mission for me, being a part of influencing surgeons/doctors/scientists to finding new solutions for FB. I am convinced that with todays technology and how much we now know in medicine, it shouldn´t be difficult finding better solutions than what is available today. In my opinion there are two ways to go about curing this: 1) Finding out why some people have more visible blood capillaries in the face, and from that finding out how to remove them. Of course, if you originate from Africa and have completely dark skin, FB isn´t visible. But for most people, with completely pale skin, it isn´t physically possible to blush no matter how embarrassed they get (they just don´t have capillaries in the outer skin of the face that are visible and expands). What is different with them? 2) Finding better cures than the ETS-surgery, that gives less side effects. I think there are particularly two things that doctors and scientists need to be made aware off, which could help in research being started and done on a bigger scale: - The ethical incentive: Making them realize how much this impacts the people having this problem. Just to mention some problem in my life because of this: Being rejected by girls when asking them out in a date, because I go bright red and that is a sign of weakness/insecurity and they want a confident man. Not getting a job, much for the same reason, at job interviews they want someone that comes a cross certain. Being assumed to be gay trying to get new male friends, because blushing when greeting them. Basically daily humiliations that destroys both the professional and social life. - The economical incentive: Making them realize how many who actually struggles with this, and how poorly todays solutions are. The people who finds better solutions for this, with less side effects, will by no doubt (and well deservingly) become very rich. I expect it also is a question of funding the research to start with. I myself would gladly help do this, and I assume I am not alone here about that on this forum, so if I come across a possible opportunity of starting to fund research with the focus on finding new solutions, I will let you know. I should also mention what KPRF is: It stands for keratosis pilaris rubra faceii, and is just fancy terminology for being born with red cheeks (Or it starts appearing when you are like 1 or 2 years old). Most doctors have not even heard of this, because it has been done so little research on. You can google it if you want to see a picture of it, and it should be noted that it is NOT the same as Rosacea. When I am calm the color is a light pink, and it blends in well with the rest of my face color. When I blush, the cheeks get dark red and very hot. I can blush for some seconds about something embarrassing, and then going back to the light color. But the worst scenarios are when I am in a "spotlight situation", like giving a presentation. That is a guaranteed blushing situation, but then my cheeks remain flushed for the entire situation and also for many minuets after when I am done with it. Like I have said, I am convinced we will find better solution to FB in the future. However I fear it will not happen too soon, and I think that I have tried everything else, but ETS now. Being the only possible solution left available, I am therefore again strongly considering it. If I go through with the surgery I will definitely come back and share my experience. So, this is the reason for the 2 questions I have written below: Questions: 1. Has anyone had the ETS-surgery, who before only blushed in the cheeks, and now are satisfied with the result? 2. Has anyone had the ETS-surgery, and before got red and it stayed like that for many minutes (perhaps even hours)? And are you now satisfied with the result? The reason why I am asking these two questions is because I am considering the ETS-surgery, and my problems are the two mentioned above. Also I have read several places that the surgery might not be effective for my type of problem (One source: http://www.chir.it/en_erythrophobia.php?lang=en)
  3. I have been on paxil for a short while and it has helped somewhat but i am still getting hot flushes and panic attacks where i break out in a hot flush and sweat / blushing. I know that paxil is a ssri. Will a snri such as effexor work better for these symptoms? Any suggestions and advice is greatly appreciated
  4. Has anyone tried paxil for blushing or flushing. Aswell as other anxiety symtoms like shaking in public etc.. much appreciated
  5. As the question says, anyone had success with effexor? How does it make you feel? Side effects? Works for blushing? How do u feel being cener of attention? Elaborate. Thank you
  6. Hi I have found what might be a possible treatment, in tablet form - however it might be quite hard to obtain from your GP at present - but perhaps not impossible if you explain the problem and in detail how it is affecting you. It is not really prescribed for this at problem individually at present (flushing / blushing), but does seem to help (to cure blushing / flushing) - and is kind of a side effect, that might not have been intended - but all suggests it could very well work! I struggled for years with the blushing problem, social situations etc. Then through traumatic experiences in my life - I developed what doctors would call a mental illness. The next stage was going through differen't medications over the years to see what worked to help this, and the blushing continued throughout. That is - until I was put on a course of what is known as 'olanzapine' - a mood stabilizing medication. And here's the good news - a few months in, no more blushing. It's also helped me mentally. I thought I would come back here and post because I was in the same situation of searching for solutions on here for a long time. A little more about this medication: -------------------------------------------- - You might find differing view points across the internet as you might with any medication: Some people have had a positive experience with this medication, some not so positive. However, here's a way I look at it: This medication is prescribed, by the NHS and across the world to patients daily, and people can stay on this medication throughout their entire life with good results, taking quite high doses daily. My view is that perhaps this would not be the case if it was not a safe form of long term medication in most cases, and positive results to be had staying on it long term - they recommend people do infact stay on this medication long term. Also - I have been on a dose of 7.5mg daily for 3 years with no side effects. Obtaining the medication: --------------------------------- It can be prescribed for a variety of disorders. Google 'olanzapine for social anxiety' and you might find some more info. Here's a link I found: http://www.nomorepanic.co.uk/showthread.php?t=121878 Here, this has been prescribed for social anxiety and seems to have worked: "I awoke the next day feeling a little groggy but relaxed, calm and not a single hint of anxiety." - Something to note is that, here this post is about an overall negative experience, but it seems to have helped with the anxiety, and was prescribed for social anxiety which is what you might need to explain to your doctor. And there are probably differing experiences with this medication, but the other point here is it seemed to help with this anxiety. 'Zyprexa' is one brand name for olanzapine, and 'Teva' is another. Who this might work for ------------------------------ I don't want to build false hope, because this solution is under studied and under explored - but it might very well work and might be worth a shot if you are considering drastic measures. It takes a little while to kick in due to the nature of the medication and how it works - some times a month or so might be needed on it to start seeing results - and if you are contemplating it, I would take your doctors advice, but at least give it a few weeks - it did not work straight away for me. Took maybe 1 to 1 and 1/2 months to start working. Doses - it might work in smaller doses, 2.5mg / 5mg or even less. I was on 7.5mg (still quite low), and have recently increased to 12.5mg, which would be considered a medium dose, and doses can go up to 30mg which would be a high dose. Things to watch for ------------------------ Your doctor can give you advice on this and people might respond differently to this type of medication. For me I didn't experience any negative side effects during the three years I have been on it. One thing is coming off this type of medication. You need to do this by reducing the dose gradually down to 0, as stopping it all at once can cause side effects. I have experienced this when stopped taking it for a period, and there was some unpleasant side effects, but taking a dose again stopped these. It needs to be reduced gradually down to get you used to not taking it anymore. Also, I did experience low mood for a while during the first few months, but this improved over time. Time seems to be the key to this medication - For some reason this type of medication does not work like a paracetamol which can work instantly at times. It takes a while to start working, before there's any consistency. Conclusion: --------------- I hope it works for people! - and hope they can post their results on here if they are going to try this option. Talk to your GP about 'olanzapine' (or brand names Zyprexa / Teva) for social anxiety, and let us know a few months in how you are doing and if it has helped. Cya and best of luck! James.
  7. Hi! Still working! : Best regards, James.
  8. I get bad blushing and also flushing. I feel like they are both caused by stress in some form or another -- but most people say ETS doesn't have much of an effect on flushing?
  9. I have found a cure that REALLY works. I have already posted this treatment, and since it has been a long time now with minimal blushing / flushing with this treatment, that is to say cured, it makes sense to highlight that this aproach really works well! - and could be a complete solution people are really looking for - life without blushing / flushing, taken care of by a tablet once a day on a night! It has really worked! So here's the complete topic again - and let me know how people get on. The only point is that it takes about 2/3 months to kick in due to the nature of the tablet, but then no more blushing / flushing! It's been consistently finished with for me: http://esfbchannel.invisionzone.com/index.php?/topic/3772-a-possible-treatment-in-tablet-form-but-hard-to-obtain-as-of-yet/ Hope it goes well! James.
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