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Found 37 results

  1. Hi! This is still working: http://esfbchannel.invisionzone.com/index.php?/topic/4063-tablet-cures-blushing/ I have gave a speach at a wedding, sat around a table holding conversation and more! This seems to wierdly work! - just go to your docs and say you're hearing voices and you've done some research, can you go on Olanzapine lol. Well, worth a shot incase you can think of another way to obtain Olanzapine. I hope someone can try it and let us all know! Thanks, James.
  2. Who has had ETS for facial blushing on the NHS in the London area? My GP referred me to a thoracic surgeon with no experience of ETS for facial blushing, but the team is very happy to refer me onto a hospital/consultant that does. Any details of specific hospitals (but most importantly the names of consultants) would be incredibly helpful for me in moving forward to deal with this horrible thing that has blighted my life for so long 😌. Thank you very much if you can help me. This is also my first post here, so Hello, and may I recommend the book 'When Blushing Hurts' by Enrique Jadresic (a psychiatrist who had what he terms 'Persistent Blushing' himself and helped to treat 100s of people from around the world). I have found the book helpful and you may do too.
  3. Dear everyone, I am not sure if my personal story is a very interesting read, since it is so similar to every other story in here. Nevertheless, it might be some who wants to read it, so I will sum it up very shortly in this post. For you who want to skip to my questions, I will post them in the last paragraph. My story - explained very shortly and simply Facial blushing (FB) started as problem for me when I was around 13-14 years old. I have always done well in school, but now presentations, group work or just raising the hand asking a question became a very painful experience. Going bright red, feeling the cheeks getting intensely warm and having stairs and comments from fellow students. I tried different solutions (nothing really helped, see paragraph below) so I started having suicidal thoughts when I was about 16 years old, because I didn´t feel I could be myself in this life and there were no cure for it. Was scheduled to have ETS when I was around 17, but cancelled before I had it, because the fear of the side effects. Had therapy instead. It is now 16 years since the problem started. It is not as bad as when I was 16, I am coping with the problem, but I am certainly not living life. I am far from where I could be in my professional life, and when it comes the social life it is practically non-existent (Dating isn´t an option and keeping meaningful friendship isn´t the easiest when you really want to have them being yourself, but at the same time trying to avoid different social situations because of the problem). Some of the things I have tried (none of them have been really successful) - Therapy - Hypnotherapy - Lasers * IPL laser didn´t work at all. But after about 5-6 treatments with the PDL (pulsed dye laser) Vbeam, the redness has been reduced about 20-25 %. Especially when flushing, like being outside in a cold weather and then going inside. - Beta-blockers * This I have found to be the best temporary solution available today. It doesn´t remove the blushing, but makes it much easier. I take them in situations I have to be in (like meetings at work), when I know I am going to blush. I take them 1 hour before, but I always get very tired for the rest of the day. - Being careless/not giving a f@ck. * It has somewhat helped, a long with therapy and coaching, in my everyday life. Focusing on what I want in life, vs what other people think, focusing on what is good about myself vs what is bad, etc. However, in FB-situations I have found it impossible to just focus on being careless. The sympathetic nervous system takes over and that you have no control over. - Different creams and cover-ups - Getting a tan - Growing a beard - Working out very intensely, eating healthy, meditate, etc. Different thoughts and experiences: I have read through tons of forums and webpages (this one and others) and spoken to different surgeons and doctors. I am amazed by how few good solutions todays medicine has to offer FB-people. Take Sweden for example. This is the country who invented the ETS-surgery, so they clearly acknowledge that it is a big problem for people in the society. Because of the side effects they have banned the surgery. But, the problem is still there! I can not believe that they let people just have the problem, and not putting money and energy in to finding better cures! The closest I have come to reading about alternative solutions are: 1) Stellate Ganglion Block. This is fluid being injected in the neck-area, and is supposed to paralyze the same nerve as you destroy in the ETS-surgery. However because of where you have to inject, you do it at the T1-level, which very often gives you Horners Syndrom. As I understand it the effects also only last for a couple of hours, which doesn´t make it a possible cure. 2) Botox. I have read that they tested this for FB in Great Britain around year 2008, but I am yet to hear about any successful results from it. It has become somewhat a mission for me, being a part of influencing surgeons/doctors/scientists to finding new solutions for FB. I am convinced that with todays technology and how much we now know in medicine, it shouldn´t be difficult finding better solutions than what is available today. In my opinion there are two ways to go about curing this: 1) Finding out why some people have more visible blood capillaries in the face, and from that finding out how to remove them. Of course, if you originate from Africa and have completely dark skin, FB isn´t visible. But for most people, with completely pale skin, it isn´t physically possible to blush no matter how embarrassed they get (they just don´t have capillaries in the outer skin of the face that are visible and expands). What is different with them? 2) Finding better cures than the ETS-surgery, that gives less side effects. I think there are particularly two things that doctors and scientists need to be made aware off, which could help in research being started and done on a bigger scale: - The ethical incentive: Making them realize how much this impacts the people having this problem. Just to mention some problem in my life because of this: Being rejected by girls when asking them out in a date, because I go bright red and that is a sign of weakness/insecurity and they want a confident man. Not getting a job, much for the same reason, at job interviews they want someone that comes a cross certain. Being assumed to be gay trying to get new male friends, because blushing when greeting them. Basically daily humiliations that destroys both the professional and social life. - The economical incentive: Making them realize how many who actually struggles with this, and how poorly todays solutions are. The people who finds better solutions for this, with less side effects, will by no doubt (and well deservingly) become very rich. I expect it also is a question of funding the research to start with. I myself would gladly help do this, and I assume I am not alone here about that on this forum, so if I come across a possible opportunity of starting to fund research with the focus on finding new solutions, I will let you know. I should also mention what KPRF is: It stands for keratosis pilaris rubra faceii, and is just fancy terminology for being born with red cheeks (Or it starts appearing when you are like 1 or 2 years old). Most doctors have not even heard of this, because it has been done so little research on. You can google it if you want to see a picture of it, and it should be noted that it is NOT the same as Rosacea. When I am calm the color is a light pink, and it blends in well with the rest of my face color. When I blush, the cheeks get dark red and very hot. I can blush for some seconds about something embarrassing, and then going back to the light color. But the worst scenarios are when I am in a "spotlight situation", like giving a presentation. That is a guaranteed blushing situation, but then my cheeks remain flushed for the entire situation and also for many minuets after when I am done with it. Like I have said, I am convinced we will find better solution to FB in the future. However I fear it will not happen too soon, and I think that I have tried everything else, but ETS now. Being the only possible solution left available, I am therefore again strongly considering it. If I go through with the surgery I will definitely come back and share my experience. So, this is the reason for the 2 questions I have written below: Questions: 1. Has anyone had the ETS-surgery, who before only blushed in the cheeks, and now are satisfied with the result? 2. Has anyone had the ETS-surgery, and before got red and it stayed like that for many minutes (perhaps even hours)? And are you now satisfied with the result? The reason why I am asking these two questions is because I am considering the ETS-surgery, and my problems are the two mentioned above. Also I have read several places that the surgery might not be effective for my type of problem (One source: http://www.chir.it/en_erythrophobia.php?lang=en)
  4. Hi! Just came across this video of a top surgeon explaining compensatory sweating (CS), and I wanted to share it: https://www.youtube.com/watch?v=TGIc-kWR2_M It's kind of disgusting to hear how severe this side effect can be. And being that this is coming from a surgeon, it's not just a horror story from a dissatisfied patient, but something that clearly this surgeon has documented. Here are his own words: "And there are some that develop what I call a severe form of compensatory sweating, where it just soaks through your clothes. And it is not if you are outside exercising, or inside exercising, or you are outside in heat or humidity. People will sweat, and should sweat, in situations like that. But if you are like in an air-conditioned environment, like I am now, and it's soaking though my shirt, or the lower back, or even my pants or the groin. It's soaking through clothes, that's compensatory sweating" - Dr. David Nielson This also show what I have been reading on other forums; that it maybe should be called reflex sweating instead of compensatory sweating, since it is not like you sweat the same amount as before, just that everything now goes below the nipple line. You actually sweat a lot more, an increased amount. As I understand it, this is the body's way of reacting when hurting (healthy) nerves, and I believe this can be seen for instance when people have been in car accidents. Where nerves have been damaged, and the person involved afterwards sweats a lot more. Me personally, when being ill, I sweat al lot more, but I don't know if that is relevant to having nerves destroyed.
  5. I assume I dont need to explain how much blushing has affected my life so I will get straight into it. Im looking to have ets surgery. Has anyone had ets for facial blushing and has it helped. Can you go over side effects and possibly your story if your willing to share. My blush happens like an switch it just comes and its really hot and uncomfortable. Sometimes if i dont leave a situation my face will sting and feel very hot. Does anyone else have these symptoms and will ETS help
  6. hello everyone, I am a blusher and I am doing an artistic video which is also about blushing, it is about fragility and loss of control. I am doing some researches and trying to find some people who are willing to be recorded while blushing. I would love to have some visual material and to chat more about it with other persons, if anyone is interested I would be really happy to meet or skype and I ll explain more about it! let me know! and thanks! M
  7. Hello! Recently I came across a forum of someone who had tried the no flush version Niacin and found relief in both blushing and anxiety. I have spent the last day trying to find more information on the topic but I can't seem to find anything... if someone has knowledge of this specific supplement and its relation to blushing and anxiety I would love to hear more about it! Thanks.
  8. I have been on paxil for a short while and it has helped somewhat but i am still getting hot flushes and panic attacks where i break out in a hot flush and sweat / blushing. I know that paxil is a ssri. Will a snri such as effexor work better for these symptoms? Any suggestions and advice is greatly appreciated
  9. I have been blushing from birth as my parent suffered the same but had a successful ets operation, i blush in any situation and have permant redness above eyebrows which is unusual for most blushers so i decided to get reffered to a surgeon. I was wondering the how bad the sweating after the surgery is as i can deal with swapping the two around aslong as it not unbearable?
  10. Has anyone tried paxil for blushing or flushing. Aswell as other anxiety symtoms like shaking in public etc.. much appreciated
  11. As the question says, anyone had success with effexor? How does it make you feel? Side effects? Works for blushing? How do u feel being cener of attention? Elaborate. Thank you
  12. As I have realized that medicines/drugs actually can help reducing blushing at a significant level, I decided to read up on it as much as possible. I have therefore gained some knowledge that I believe some will find valuable. For people only suffering with blushing at certain situations, like presentations, taking Propranolol (a beta blocker) and/or Benzodiazepines an hour before is often the solution. This is not what this thread will be about. My goal is to find the best medicines that you can take in the morning, and that last for a whole day (I will post information about different medicines in this thread, but for people interested in my own personal experience I have posted my information here: http://esfbchannel.invisionzone.com/index.php?/topic/4079-kprf-red-cheeks-questions-and-my-facial-blushing-story/). I have found that there are 3 different types of medicines you can take every day, that will reduce blushing. I will also get into natural supplements that can be helpful. You can choose to just use one og the medicines, but a combination of several might be a better option. This is because if you just use 1 medicine you might have to use a high dose to get an acceptable effect, but then the chances of getting many side effects also increase. Whereas when you take several you often do not have to take high doses. The medicines also affect the body in different ways, so different medicines may work best for different situations, and therefore a combination of several might be the best fit. When choosing a medicine make sure to pick the slow/extended release version, when available, so that it will last for a day. The side effects from the medicines are actually very similar in all medicines. Common side effects are fatigue, sexual dysfunction, etc. But every person respond somewhat differently, so you have to try for yourself. And of course the higher dose you take, and the more medicines you combine, the greater are the risks for side effects. Beta-blockers The main usage of this medicine is for people with heart problems. They work by blocking the effect of Norepinephrine, which is involved in the ”fight and flight”-mechanism. It is particularly helpful in typical “high pressured situations", like when giving a presentation. Atenolol: This is the beta blocker you should pick. It is known to last longer than propranolol, and with fewer side effects. Lowest dose is 25 mg/day, but you can increase up to 100/mg without a problem if needed (maybe even more). If you don´t respond to atenolol, there is a slow release version of propranolol available. You usually will be able to see the full effect from this medicine the same day you take it, but at least within two weeks. Antidepressants As the name indicates this is a medicines used for depression, but it is also used for panic attacks, social anxiety and general anxiety. It works by increasing the level of serotonin in the brain, and it is known to help with both blushing AND flushing. It works particularly well in “everyday blushing” when talking to people. There are so many different antidepressants available. I will list some of the once I have read to be most beneficial in curing blushing: SSRI (Top 4 – starting with the best): 1. Zoloft (Sertraline) 2. Paxil (Paroxetine) 3. Lexapro (Escitalopram) 4. Celexa (Citalopram) SNRI 1. Efexor (Venlafaxine) This is the only SNRI to consider. Buspirone (In combination with SNRI or SSRI) If you experience sexual side effects from these medicines, which is very common, one way of solving it is combining them with this drug. It is mostly prescribed for general anxiety, so the medicine by itself may also cure blushing. Mirtazapin This is one of the few antidepressants not known to give severe sexual side effects. So, if you are worried about that, this might be one to try. You should see the full effect from all antidepressants within 4-8 weeks. Pregabalin (Lyrica) This is a medicine mostly used for epilepsy, neuropathic pain and general anxiety. It increases the GABA production in the brain, and calms down the nervous system. Most surgeons performing the ETS surgery think blushing comes from an overactive nervous system, so this might be the perfect drug for blushers? You should see full effect from this drug after 1 week. Natural supplements: 5-HTP - This is the natural version of an antidepressants, and works by increasing the level of serotonin. Normal daily dose is 100-300 mg/day, taken before bed and in the morning. A good dose to try is 100 mg in the morning and 100 mg before bedtime. If you do not get any effect from 5-HTP, you can try L-tryptophan. It is also a natural supplement working in the same way as 5-HTP. 500-1000 mg is a recommended daily dose. You should not take both 5-http and L-tryptophan. L-theanine – This is the natural version of Prebagalin/Lyrica, and it increases the GABA-production in the body. 400 mg is a recommended daily dose. Also here you can take 200 mg in the morning and 200 mg before going to bed. Also note: There is a natural supplement called GABA. This is not known to cross the blood brain barrier, so there are no scientific evidence saying that the supplement called GABA will work. Still, there are people claiming it to work, so if L-theanine doesn´t work for you, you can always try this. The natural supplements take 4-8 weeks before you can se the full effect from them. There are no severe side effects to get from them. So if you have not tried any medicines you really have nothing to loose trying out natural supplements, to see if they are of any help to you. Combinations of drugs As mentioned, a combination of several medicines, using low doses, might be the best option. Perhaps antidepressants and beta-blockers is the perfects fit? Or Lyrica and beta-blockers? Maybe a combination of the two natural supplements is enough for you? You have to try this out for yourself. Please post any success stories in the comment section below. Make sure not to mix medicines and supplements that should not be mixed, like 5-HTP and an antidepressant. Note: Taking medicines should not be done without consulting a trained physician. ANY SUCCESS STORIES REGARDING USING MEDICINES/DRUGS IN CURING BLUSHING ARE HIGHLY APPRECIATED. PLEASE POST THEM IN THE COMMENT SECTION BELOW.
  13. Has anyone had ets for facial blushing. Can you please go over your situation and how it has affected you before and after surgery. Every little detail helps thanks. Also please go into details of the blush. How it comes on how it feels etc. E.g. mine gets hotter and hotter and feels really uncomfortable. Does anyone get the immense heat with their blushing.
  14. Hi everyone. I would like to speak to some of you who have had ETS done for facial blushing it would be brilliant to hear your feedback.
  15. Hi everyone, I have just stumbled across the ESFB website, and after reading so many of the posts and comments, I feel incredibly moved and touched by the accounts bravely shared by everyone. It has reminded me how debilitating and crippling our issue is. I am truly humbled to read of your perseverance and strength in the face of something that is so daunting, so pervading, so dominant over our lives, and your efforts to overcome it. The one thing that has really struck me, is the amount of young people that are struggling with the same problem that has accompanied me along my life journey to date, but more worryingly to me, the effect of the problem, and the dominance of it in your individual lives, constricting your development; not through lack of foresight, direction or will, but not knowing how to deal with our shared nemesis. This has moved me beyond words, and It suddenly struck me that my experiences, and especially how I have dealt with it recently, might be able to help you take back control of your life relatively quickly, and not suffer for years to come unnecessarily, putting your potential on hold until you maybe stumble across a solution at 37, as I did. The first thing that stood out to me about the ESFB website, was the “you are brilliant” welcoming. This resonated with me enormously. This statement has been the foundation of my acceptance, and the beginning of overcoming this particular obstacle in our lives. One which I would like to expand on now; and one which I have always believed, but did not always realise the power and potential in believing: You are extraordinary. Let me say that again: YOU. ARE. EXTRAORDINARY. Your potential is limitless. You are not defined by your blushing. The sum of you does not = blushing. Look in the mirror, even at your lowest ebb, and find one thing, however small, that you can smile at. Even if it is just the fact that you have stood up and are now looking in the mirror - it is a beautiful first step toward realising that this is an episode, a chapter, a challenge, an ally even, that will make you stronger, and help you to move forward and thrive free of this, live an extraordinary life, and to help others. Everything you need is within you. Your magnificence is already there. You are capable of things that you probably cannot even conceive right now, because the scale of this condition seems so insurmountable. This is truth. This is part of your truth, your story. Write yourself a life mantra, similar to the above and say it to yourself often. Hold these thoughts. Your mind is a beautiful gift, try to redirect its focus. Start to change the narrative of that omnipresent voice in our minds that haunts us so much. The one that says, “don't go red, don't go red”, and “oh great, I've got to speak in a minute and I'm going to go red in front of all my colleagues”. Visualise in your mind the things you want to do but think impossible because of this obstacle - whatever you hold in your mind, becomes your reality - I truly believe this, and has helped me enormously. As I read about the experiences of my fellow sufferers, I have realised that my relationship with blushing is not a solitary battle. I am not alone, and have not been alone during the past 25 years of living with this crippling problem which has, up until recently, dominated my thinking, restricted my progression, instilled a fear of blushing in me resulting in panic attacks, limited me from realising my potential, and to which, there has seemed to be no light at the end of the tunnel. I also realised that we all had so much in common in our experiences.... The absolute dread at being put on the spot and asked a question in front of a whole class or office meeting group, ( in fact, any "put on the spot" situation in front of a group of people), having to present at work to peers, having a conversation at a checkout till or bank with the cashier and being aware of people watching and listening to you; having to stand up in the middle of the office, and give an explanation about your role to a group of visitors; that first day of company inductions where you have to introduce yourself; audience participation at comedy gigs, theatre productions or workshops; dinners with a group of new people when you're asked a question and literally the entire group attention is focused on you; speaking in the open office to a person you find attractive and worrying that "it" will happen, and everyone around you will know how you feel, and the person you find attractive then thinks you're weird. When "it" finally does happen, and non-sufferers think it’s incredibly funny to highlight the fact to a wider audience who hadn't noticed, but have now, and having absolutely no idea that you are crumbling inside, and how low you then feel for the rest of the day beating yourself up about it. Being asked to do a reading at a wedding by a dear friend and worrying you will literally broadcast your problem to friends and family that you may have concealed the issue from for many years; when the person you love starts fantasising with you about the future and all you can think about is it happening on your wedding day - it's supposed to be a blushing bride, not groom right?? On that note, managing to conceal it from your girlfriend by avoiding certain situations and worrying that if you had to have the conversation, she will think less of you and will affect her view of you because she is not a sufferer and does not understand. Not applying for promotion because you know it will mean more public speaking situations. All the above regularly left me beating myself up, feeling worthless, broken and ashamed. Reducing my self-esteem to very low levels, where I would become withdrawn. Desperately trying to reflect on the positives in my life, the things I am grateful for, the gifts I have been bestowed, my achievements to date - anything that would lift me from the despair I felt, but still the sense of failure prevailed. Feeling beaten, alone and hopeless. Like many of you I would imagine, I have spent so much time over the years pondering on my problem and what has maybe happened to me in my earlier life that has sparked this reaction. I still can't answer that question, but it has not been necessary, for me at least, to know the answer to have triumphed over it. What I find incredibly interesting is that this subject - our problem - seems so taboo and unspoken about. The level of ignorance amongst non-sufferers, and some health care professionals for that matter, actually put me off confiding in people and keeps the problem "underground". So, what has helped me? -Regular yoga practice and meditation – ESPECIALLY MEDITATION. It has helped me become a lot calmer - not in a constant state of “fight or flight”, and switch off the negative voice in my head. -Learning about the nervous systems in the body, and how you can build resilience by using breathing exercises and movements that will augment the parasympathetic nervous system and help to calm the sympathetic nervous system. -Positive affirmations. -Positive visualisation. -Speaking about our issue. For a very long time I could not bring myself to even acknowledge what was happening to me to others. Now I seem to be sharing and talking about it so often and without hesitation. -Moving outside my comfort zone. For me, I always knew I would have to face my fears head on to overcome it and build confidence. To do the very thing that scared me the most. I went on a yoga teacher training course, and have been teaching classes since returning. The thought of which used to scare me to death. Even if you have no intention of teaching, I would massively recommend doing this. It built my confidence, expanded my knowledge, and was the most supportive and loving environment I have ever been in - it helped to heal me, and was one of the most profound experiences of my life. -Acceptance. When it occasionally happens it's not such a big deal anymore, and I know what works for me to get my mind back in the right place if I happen to dip back into old thinking habits. How has it helped me? -Anxiety in social and work group settings massively reduced. -Colossal reduction in blushing episodes in all aspects of my life. -Increased confidence and happiness. -Better sleep. -No longer need to take medication – I was prescribed Propranolol for a long time (please talk to your doctor before stopping taking any medication). -Advancement in my professional life. -Improved communication. -More belief in myself and abilities. -Changing my own view about blushing so it’s a small part of me, not my entire world. -I am now doing things that I once feared. -Equipped me with coping tools and helped me change my mindset. What to do if this seems right for you? -Look up your nearest yoga/meditation centre or teacher, and either go and have a chat with them, or email them to see how they can help you. I’m sure you will find them most receptive and helpful. It may take a bit of time to find a teacher or practise that you feel comfortable with and feels right for you. -See if there are any beginner classes near you. If a group setting is hard for you, then don’t worry, lots of teachers offer 1-1 sessions, and may offer discounted rates or be involved with a support group which will help keep the costs down. -Have a look online for guided meditations that you find calming and soothing that you can do at home, or download onto your phone. -Speak to your Doctor before attending a class. -Have a look at the below video for some of the latest Science about yoga: https://www.youtube.com/watch?v=PMjhM7V_FyU It is worth pointing out, particularly if you are new to yoga, that yoga is a life philosophy that deals with the mind, body and spirit. If you are not spiritual in any way, that is totally cool; so many people that attend classes have no interest in this part of yoga but still benefit greatly from practising. Yoga is not a religion or cult, and accepts people of all faiths or none at all – give it a go, you may find it incredibly helpful. I truly hope this will resonate with, and help some of you – you are not alone my friends. My sincere thoughts, empathy and compassion are with you, along with excitement about your futures to come. You are extraordinary. Your potential is limitless. You are not defined by your blushing. The sum of you does not = blushing. Everything you need is within you. Your magnificence is already there. Much love, understanding and happiness to you all. Take care of yourselves, Graham. Cambridge, UK. A quick note, I am writing about my own personal experiences. I am not a medical professional, and realise that what may work for me, may not work for you. That said, you may not have considered the above, so it's worth a shot. The above practices have had a monumental positive impact on my suffering with this cruel condition, and I feel it is my duty to at least raise them for discussion, that they may hopefully offer help and comfort for some, whom may needlessly be in a very unhappy place - of which, I have experienced so often before.
  16. Hello everyone, to begin I would like to say that I am an eighteen-year-old girl from France, and have been suffering from excessive, uncontrollable blushing since I was fourteen. This may seem alarming since I am typing in English but I was taught the language at a very young age. After a year of being on this website, I have concluded that this is the last remaining right option for me. I have tried cognitive behavior therapy, and I have tried medications such as propranolol, clonidine, SSRI's and Benzos. They may have given relief for a few hours each time, but I don't think this is the answer to my problem. The blushing makes me very unsociable, anxious, sometimes depressed and worried, and this is one of the reasons why I am deciding to bite the bullet. It is very debilitating to have seen the friends I lost around 15 years old because of the stress and anxiety I had, I just didn't like being around people anymore, and I did not like this since beforehand I was the most sociable of the bunch! I am acutely aware of the side effects of this surgery. Compensatory sweating, heart rate decrease, and potential Horner's syndrome but honestly I would happily switch constant heat in my face for stomach, back, feet and leg sweat. Please take into consideration that during the summer my hands and feet sweat on a 7-8 level, my face to a level 9 and my trunk to a level 0. (1 best 10 worst) After seeing two surgeons (one who refused to do the surgery because of the risks of Horner's syndrome and the other who said he would do it but the cost was very high- 12,000, this is because he was not in France ). I am seeing a surgeon on the 7th of September 2017 which is two days away now. The surgeon is in France which means the surgery should be covered or partially covered by my insurance. I would like to finish off by saying that if anyone who has had the surgery could contact me for support and advice, that would be great and that once my surgery is over I will be happy to answer any questions! Please take into account that this thread will be updated often after my surgery. Thank you for any support and feel free to leave responses
  17. Hi everyone. I never thought I would ever join a forum like this but it seems like one of my last options. I work in customer service and sales so going red every day is debilitating and I honestly want to quit my job. I have been working through constantly blushing now for three years and I am a 25 year old female. I have taken everything and tried everything to stop this which is so defeating. Today I was able to get a perscription of Lexapro only 10 mg and I do have propanolol, a beta blocker. I really don't want to have to take 3 10 mg propanolols but I might have to because I start a new retail job in 7 days... Does any one have any advice? Any expierences with taking SSRI's for this problem!
  18. Hi. I`ve been suffering for facial blushing since 2-3 years ago, I have no idea how it started, in high school i had no problem, I was always in the middle of attention, then in college on my 3rd year i guess, i asked the teacher a question, then a friend of mine said "yo why did you go so red?", then from that moment i developed erythrophobia and it ruined my life, can`t have a girlfriend, can`t have a job, can`t go shopping, didn`t finish college.., can`t go aut with friends.. only thing that helped me not going red in certain situations was alcohol and being in a dark space, like a club or something.. now i found out that meds might work, my fb is activated due to pure social activities, I heard people here going red because of exercising, temperature, food.. that`s not the cause for me, for me it`s only psychological I guess.., there`s a chance to be something physiological because it started 2-3 years ago.. maybe because of smoking Who the hell knows.. Anyway i didn`t try any meds, was thinking about trying eredicane, but for such an unsure product it`s kinda expensive, and I live in a shitty country (Romania, 65$, for an unemployed student it`s a lot). So i was wishing maybe you guys can tell your experiences with different meds, that helped and didn`t.
  19. Hi I have found what might be a possible treatment, in tablet form - however it might be quite hard to obtain from your GP at present - but perhaps not impossible if you explain the problem and in detail how it is affecting you. It is not really prescribed for this at problem individually at present (flushing / blushing), but does seem to help (to cure blushing / flushing) - and is kind of a side effect, that might not have been intended - but all suggests it could very well work! I struggled for years with the blushing problem, social situations etc. Then through traumatic experiences in my life - I developed what doctors would call a mental illness. The next stage was going through differen't medications over the years to see what worked to help this, and the blushing continued throughout. That is - until I was put on a course of what is known as 'olanzapine' - a mood stabilizing medication. And here's the good news - a few months in, no more blushing. It's also helped me mentally. I thought I would come back here and post because I was in the same situation of searching for solutions on here for a long time. A little more about this medication: -------------------------------------------- - You might find differing view points across the internet as you might with any medication: Some people have had a positive experience with this medication, some not so positive. However, here's a way I look at it: This medication is prescribed, by the NHS and across the world to patients daily, and people can stay on this medication throughout their entire life with good results, taking quite high doses daily. My view is that perhaps this would not be the case if it was not a safe form of long term medication in most cases, and positive results to be had staying on it long term - they recommend people do infact stay on this medication long term. Also - I have been on a dose of 7.5mg daily for 3 years with no side effects. Obtaining the medication: --------------------------------- It can be prescribed for a variety of disorders. Google 'olanzapine for social anxiety' and you might find some more info. Here's a link I found: http://www.nomorepanic.co.uk/showthread.php?t=121878 Here, this has been prescribed for social anxiety and seems to have worked: "I awoke the next day feeling a little groggy but relaxed, calm and not a single hint of anxiety." - Something to note is that, here this post is about an overall negative experience, but it seems to have helped with the anxiety, and was prescribed for social anxiety which is what you might need to explain to your doctor. And there are probably differing experiences with this medication, but the other point here is it seemed to help with this anxiety. 'Zyprexa' is one brand name for olanzapine, and 'Teva' is another. Who this might work for ------------------------------ I don't want to build false hope, because this solution is under studied and under explored - but it might very well work and might be worth a shot if you are considering drastic measures. It takes a little while to kick in due to the nature of the medication and how it works - some times a month or so might be needed on it to start seeing results - and if you are contemplating it, I would take your doctors advice, but at least give it a few weeks - it did not work straight away for me. Took maybe 1 to 1 and 1/2 months to start working. Doses - it might work in smaller doses, 2.5mg / 5mg or even less. I was on 7.5mg (still quite low), and have recently increased to 12.5mg, which would be considered a medium dose, and doses can go up to 30mg which would be a high dose. Things to watch for ------------------------ Your doctor can give you advice on this and people might respond differently to this type of medication. For me I didn't experience any negative side effects during the three years I have been on it. One thing is coming off this type of medication. You need to do this by reducing the dose gradually down to 0, as stopping it all at once can cause side effects. I have experienced this when stopped taking it for a period, and there was some unpleasant side effects, but taking a dose again stopped these. It needs to be reduced gradually down to get you used to not taking it anymore. Also, I did experience low mood for a while during the first few months, but this improved over time. Time seems to be the key to this medication - For some reason this type of medication does not work like a paracetamol which can work instantly at times. It takes a while to start working, before there's any consistency. Conclusion: --------------- I hope it works for people! - and hope they can post their results on here if they are going to try this option. Talk to your GP about 'olanzapine' (or brand names Zyprexa / Teva) for social anxiety, and let us know a few months in how you are doing and if it has helped. Cya and best of luck! James.
  20. Hello everyone!! This is my very first post on this forum. I am so happy to have found this community. I have never met anyone who could understand what I am going through... I won't go through the mental struggle that blushing gives me because I know you all know! Basically, I have always blushed easily but only started to notice and care about it when I was in high school where people started pointing it out and laughing about it. I am now in my mid twenties, and everything makes me blush, from talking on the phone, to talking to my boyfriend/closest friends, to meeting new people, presentations, looking at myself in the mirror... I only blush on my cheeks however, so I guess I am lucky in that way. I am very pale so its VERY noticeable. I also flush very easily. Going out in cold temperatures makes my cheeks and nose bright bright red. I don't burn in the sun very easily though. I am just always red! After looking at pictures of people with kprf, I am almost certain I have it. However I went to my GP a few weeks ago to tell her about my red face problem, she said she thinks it is only my skin type and that she doesn't believe I have anything to diagnose, other than the pretty obvious social anxiety that comes with blushing (when I was telling her about it i obviously went all red, was sweating, and cried - it was the first time that I admitted to my problem out loud, and it was hard getting the words out. She was VERY understanding, and nice about it though!). She said she would think about my situation, and get back to me. I went to see her a week later, and she prescribed the SNRI Effexor, because she said it could ease my anxiety about blushing, calm my destructive thoughts about it, and allow me to focus better on other things and not live life with this constant on edge, "fight or flight" feeling. She didn't want to prescribe a beta blocker because she said since I am a very thin women, it will probably make me feel awful and possibly make me faint. She also said it would stop me from doing cardio (which is a problem because I really enjoy running!). I read a few posts of blushers who were helped by Effexor, but I am afraid to start it given the nasty side effects that can happen. What are you guys' thoughts on Effexor? Any opinions on other medications that could help me? Since I already bought the pills, I will probably give them a try... I have to admit the sexual side effects are really scaring me since sex is an important part of romantic relationships. I would love to hear your thoughts about this drug. Or, just say hi to me and I will be happy to meet new people that understand what I am going through!
  21. Hi! The most common side effect I read about from the blushing surgery is compensatory sweating (CS). It seems you are almost guaranteed to get at least a little bit of this. But two other side effects I read about is extremely cold hands and fatigue/tiredness. I was wondering how common these side effects are. If it is extremely rare, or if it is as common as CS. To all of you who have had surgery done for blushing, do you have colder hands than before? I have read several posts about people having extra warm hands for a year, and then having permanently extremely cold hands thereafter. Do you have this, and if so, how bad is it? Are you more tired than before? If so, how is this affecting your life? Cheers
  22. Hello everyone out there! I have just stumbled across this website a couple of days ago, and I wish I would have known when I was younger that there were so many people like me with same issues! I have felt alone my whole life, struggling with the red blotchy face... I felt like no one truly understood me. Starting to notice at a pretty young age, in the middle school years, that my face would get so red and hot feeling for the most odd reasons. People would ask me why I was so red and put me directly on the spot ALL THE TIME. I couldn't figure out what would cause it, because it would happen during random times of the day and in different situations. I constantly tried using foundations and other makeup products to hide the embarrassing blotchy red skin. Nothing worked. Wasting my allowance money on all sorts of quick fix remedies that always failed. And the family that I grew up in was a very strict and private family. I was the oldest of two girls, and my parents brought us up in a Christian church. I loved my childhood, don't get me wrong. But I could never go to my parents for issues I had. I always had a hard time communicating with them, and that made my anxiety about getting red and blotchy even more. I started to only wear my hair down, to hide the majority of my face. I never had short hair cuts. When it came to school activities, I was too afraid to join in most of the time. I would go to one school dance, get an episode of a long lasting face and chest blush, and never go again. It kept me in a social state of being shy and nervous. I turned to food as comfort because it made me feel good. My self esteem was very low due to weight gain and the red face. In high school I couldn't even participate in P.E. class because I would get all worked up with the hot red skin, so I got an exception to graduate without taking the required class as long as I took an online class. When senior photos came around, I made sure the photographer would edit the pictures to make my face blend better instead of having harsh red blotches all over. After I graduated high school in 2007, I went to a Christian Bible college that my parents paid for. It was just a year long course, and I made a lot of good friends. But even in college, if I started getting a tiny feeling of an episode starting, I would run and hide in my dorm room. I would be so very afraid to participate in activities, I would just pray and pray for it to go away. I graduated the Christian college, and came back home to my parents house while I looked for a job. I only applied for places that I wasn't required to put my hair up. (So no fast food jobs that make you have your hair pulled back for the food... etc.) I was still packing on weight because it was the only comfort I had. I was hired at a grocery store as a cashier, and things seemed to go pretty well. I would still have episodes, but I was able to have my hair down so that I could hide it. And if it got too bad I would just run to the giant walk-in freezer and try to cool it down. While still at the grocery store and living with my family, I joined a dating website. I figured since no one in my day to day encounters liked me, someone online would have to like me even though I was over weight and had this blushing problem. Sure enough, I started talking to a guy who lived almost 2 hours away. My family always wanted me to wait until marriage to move in with a man, so of course I was eager to marry the first man who liked me. He purposed after knowing me for 3 months, and we got married a year later. (The whole engagement I would pray and beg God to just let me have a normal face during the wedding. I would find myself trying to bargain with God, and demanding him to do this one thing for me.) The wedding turned out beautiful. I caked on makeup and made sure my hair was down, which helped me feel like it wouldn't be noticeable. My husband made a pact with me that he wouldn't point out when I would get red. He never understood it, but at least he didn't draw attention to it. The marriage was awful, I suffered from depression and anxiety. He turned out to be an abusive man. I had the courage to leave him thankfully after 2 years, and no children. I was put on anxiety/depression medicine for the first time, which started to kind of help the episodes become less frequent. But they still occurred often, and I spoke up about it with my doctor finally for the first time. They just increased the dosages of the meds, which made me a zombie. And then prescribed me topical ointments to try, as well as recommend that I take an allergy pill to relieve the redness. Nothing helped it still. I felt helpless. And they were out of ideas. I tried to change my diet and exercise... still no change in the facial blushing. I just kept eating my pain and fears away, gaining and gaining more weight... and then still having episodes daily. I had got pretty good at figuring out times of the day it would happen, and situations (like eating out at a restaurant) that it would happen the most. I would avoid going to different events due to this. I finally wanted to at least put a stop to my weight gain if I couldn't fix my red face. So in 2014, I had a gastric bypass surgery. I lost 104lbs in just a little over 1 year! It was amazing results. During this time I would go tanning everyday to make my blushing less noticeable. Which helped some, but it would still show. When my funds could no longer support my tanning, I just stopped cold turkey. And it made the redness become very noticeable again. I became fearful once again to be as social as I wanted to be. I started gaining back weight because I would go straight home after work to eat and hide out in my home. I went to therapy in hopes of working through my anxiety and triggers, but no one I went to could help me. It was only scratching the surface of my issues and never directly dealing with how the red blotchy skin affected my everyday decisions. That is when I finally decided to keep looking for answers and stumbled across forums like this one. It is amazing to see that I am not the only one out there that struggles with this. I want the ETS surgery soooo bad! I had never heard of such a thing until last month. I wish I would have known about it back when this all started. My life would have probably turned out so different if I wouldn't have had this haunting blotchy face. I made an appointment with my doctor next week to talk about it and see if I could have insurance cover most of the expenses. Wish me luck!
  23. Hi, I wanted to share my story and ask for advice. I'm an Engineering student, 22 years old from Argentina. I started blushing at the age of 15, didn't matter much back then, I just thought it may dissapear with time. But it didn't, and now it's crippling my life. For example, one year ago I started working at an Engineering company. The fear of blushing was always there, but at first it didn't happen as I didn't have a lot of contact with people. But then I started going to meetings and after a while, I was the one speaking in front of the department. Guess what. Yep. Blushed. A lot. Everytime since then, I felt sad, like I couldn't handle the situation. So after a couple of situations like that, I decided to quit the job. You know what it feels, frustration, sadness... The stress of blushing made my day a lot worse. Weird thing (or not?) is that it just happens in exams or in stressful situations in public (meetings, speeches). I'm a very extrovert person, and never had this problem in my private life (sometimes after running, heavy excercise or sex I blush, face, neck and chest, but that's not what bothers me). I went and shared this with a doctor who recommended ETS. Mentioned all side effects and said the was no guarantee that it would completely dissapear, but that it was my best option if I wanted to give it a try. He said that therapysts don't work and advised not to use meds. I read all the testimonies, positive, neutral and negative ones. Side effects got me worried. I sweat, A LOT, hands and face and I'm in a very humid region of Argentina (right now, 35°C - 85% RH) so I fear that it will get worse after the ETS. And what about people that says that it "changes" you, your humour and how you feel? Have you experienced that? Just wanted to share and ask for advice, I know it's my choice and I have read everything I found, but I wanted to hear it from the ones that have gone through ETS. Thanks and have a nice day!
  24. Can you remember how and when your facial blushing started? What triggered it? In my case, it was back in high school when I was 17 years old. There was a guy who liked me and used to turn red when he saw me. I didnt like him at all but all the sudden I started turning red every time I saw him. It got worse day after day until today 8 years later.
  25. From what I understand, I was born with, "rosy cheeks". I didn't notice them until I reached 8th grade when some kids made fun of me after a speech in class and said my cheeks were "cherry red". Up until that point, I never really noticed the red tint to my face. Out of curiosity I looked back at old pictures and determined the redness was always present. The constant redness has increased with age, possibly from puberty, but does get worse from heat, exercise, or embarrassment. I have seen specialists, but none of them can put a finger on what is causing the permanent redness. Like most of you, it has affected my life in many way such as, almost losing my job because my manger didn't like that the color of my cheeks made me look sick in front of customers, finding it hard to apply to any colleges out of sheer fear of having to explain my condition to new people, and contributing to me becoming a very quiet person with few friendships. It has essentially ruined my life and is now to the point where I skillfully avoid my reflection. In fact, I haven't seen my full face in over 6 months because I cover my lower face with my free arm when I need to look at my hair. What does it take to get through this challenge? What condition do I have? Is this something that can be treated or only managed? Is it physiological or psychological? I just need some answers guys, please!
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