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scarface

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  1. Like
    scarface got a reaction from mumof3fromaustralia in CURED from facial blushing!   
    Very interesting James.  I'm glad you found something that works and have decided to share it with the rest of us.  I will look into Olanzapine next chance I get.  
    Perhaps lying to the doctor to get a prescription isn't the best strategy though.  I say that because I work in healthcare and I know that medications get prescribed sometimes for people because one of the side effects of the med is helpful to them.  I think if we were upfront with the doctor and just told them about the blushing and that you have read that this medication will help, then the doctor would be able to work with you on that.  It is also important to note that the FDA keeps track of what medications are prescribed, to who, and for what reason.  If you tell the doctor you are hearing voices he would have to give you a diagnosis of something along the lines of schizophrenia in order to justify writing the prescription.  So now your medical record states you may have a psychotic disorder and that may interfere with your life in unpredictable ways, for example by barring you from employment at certain places.  I think it's best to just be upfront.  Doctors are open people and generally have great judgement.  
  2. Thanks
    scarface got a reaction from CodeRed in Scheduled for ETS reversal on 08/31/2018   
    To anyone who is interested, the ETS reversal is done.  You may follow up with my progress and read about my experience on the ETSandReversals website.  Here is a link to the thread:
    https://www.tapatalk.com/groups/etsandreversals/scheduled-for-ets-reveral-on-08-31-2018-t6289.html
  3. Thanks
    scarface got a reaction from Oldphotographs in Has anyone ever successfully got rid of their blushing through exposure?   
    Anything is possible.  The strategy you’re suggesting seems like it would require a total personality change...no easy feat.  
    Ive heard of people overcoming social phobias by joining something like toastmasters international.  People sometimes report that they not only overcame their fear of public speaking, but that they come out of their shell completely and have much more active social lives thereafter.  It is certainly something worth considering.
    That strategy requires a big commitment of time, work, dedication, and perseverance.  Not many people are truly willing to do all that.  It is much easier to take a pill or get a nerve cut.  
    I’d encourage you to try it and report back. If you could be a success story then you would positive impact many peoples lives on here.
  4. Like
    scarface got a reaction from Nina in Scheduled for ETS Redo on 06/16/17   
    Update:
    There is nothing new with my body.  I wanted to update to let you all know that today I joined a gym in order to begin exercising regularly again.  As I stated earlier in the thread, I will try to cut down on body fat to see if it will result in decreased compensatory sweating.  As a rough estimate, I would say that I am around 15-17% body fat right now and will try to get down to 12%.  I will update when I get close to the goal and/or feel I have some conclusive results.
    In addition, I noticed the gym had a sauna in the locker room.  In the spur of the moment, I decided to go in to test out my CS.  As expected, after about 10-15 minutes in the sauna I was sweating heavily from my lower 2/3 while my upper 1/3 was completely dry.  This gave me another idea which I would like to elaborate on:  
    From what I gather about our sympathetic nervous systems, there is overlapping innervation of end-organs between the different sympathetic ganglia.  For example T1, T2, T3, and T4 all go to various parts of the upper body and some of these ganglia innervate the same organs together (such as the heart).  For us blushers, a T2 sympathectomy simply cuts communication between T1 and T2, but each of those ganglia continues to send nerve signals out to the rest of the upper body.  Why does cutting communication between the two ganglia stop blushing and sweating in the upper body?  I do not know and have not been able to find the answer in any medical textbooks.  However, due to the overlapping responsibilities of the ganglia, I would make a conjecture that there is still sympathetic innervation to the upper body after ETS, but just NOT AS MUCH.  So, in addition to my body fat experiment, I decided I will be doing another experiment to see if perhaps I can somehow restore SOME sweating to my upper body by going into the sauna regularly.  My theory is that after a period of time of regular exposure to the sauna, the sensitivity of my upper body will slowly begin to adjust, to the lower sympathetic output it is receiving, enough to allow some sweating to occur.  If successful, this would likely also restore the feedback mechanism going to the brain which might put a hamper on the compensatory sweating.  Perhaps it will help with the extremely dry hands too.  I will make an attempt to go into the sauna 3x/week, for 15-20 minutes each time, for a period of 6 months.  It might be a long shot but we'll see what happens.  I will keep you all updated on what I find.  
  5. Like
    scarface got a reaction from Steven in Scheduled for ETS Redo on 06/16/17   
    6 Month Update
    CS:  It is tricky right now but I will describe it the best I can.  I have not had a single episode of severe CS in about 2 months.  But then again, it is winter and I haven't been physically very active recently.  I do believe that my body is fully capable of having severe CS episodes though.  The reason is that I am now experiencing "hot flashes" in the lower 2/3 of the body when I get too hot.  For example, sometimes the heater in my apartment runs longer than it should and it gets too warm inside.  If I am sleeping at night and under my covers, I will wake up and it will feel like the lower 2/3 of my body is having hot flashes while the upper 1/3 is warm but otherwise feels normal.  I notice that I do have mild CS when this happens so I just take the covers off to cool down and the sweating/hot flashes stop.  Other times during the day, especially after having coffee, if I get too warm I experience the hot flashes as well.  There is definitely something going on with the lower 2/3 of my body as a result of the sympathectomy.  
    Hands:  The extreme dryness persists.  It is still problematic for me and uncomfortable.  I have experimented with several lotions at this point.  Hands down, the best hand lotion for this is "O'Keeffe's Working Hands Cream".  You can buy this stuff almost anywhere.  It stays on the longest and does the best job.  Highly recommended.  
    Feet:  My feet definitely sweat more than they used to.  For the first few days after surgery I remember they were completely dry, but then my body decided "F that" and they began sweating.  It isn't horrible or anything, but it is worse than before surgery and at the end of the day my socks are usually damp and need to be changed.   
    I am still 100% blush free.  It has been great from this standpoint.  It has done wonders for me in terms of relieving psychological stress.  I am now completely free of anxiety as well.
    My scars continue to slowly heal but are very still very visible.  I don't feel comfortable being without a shirt for this reason because underneath my armpits looks like kind of a mess.  I would still advice people to stay away from Dr. Port for this procedure.  
    Mentally I still feel the same.  There is no fogginess or anything like that.  My metabolism in my body is still the same.  In fact I have recently started doing some light exercising again due to a shoulder injury finally healing, and I have found that my physical stamina is the same as before.
    Overall the surgery was worth it.  There is no question that suffering from blushing for 16 years wreaked havoc on my life and the effects of that are something I now have to deal with and recover from as best I can.  I don't have friends and don't speak with family sadly.  But, at least I have some peace of mind from the blushing demon.
     
  6. Like
    scarface got a reaction from blushingman in Scheduled for ETS Redo on 06/16/17   
    6 Month Update
    CS:  It is tricky right now but I will describe it the best I can.  I have not had a single episode of severe CS in about 2 months.  But then again, it is winter and I haven't been physically very active recently.  I do believe that my body is fully capable of having severe CS episodes though.  The reason is that I am now experiencing "hot flashes" in the lower 2/3 of the body when I get too hot.  For example, sometimes the heater in my apartment runs longer than it should and it gets too warm inside.  If I am sleeping at night and under my covers, I will wake up and it will feel like the lower 2/3 of my body is having hot flashes while the upper 1/3 is warm but otherwise feels normal.  I notice that I do have mild CS when this happens so I just take the covers off to cool down and the sweating/hot flashes stop.  Other times during the day, especially after having coffee, if I get too warm I experience the hot flashes as well.  There is definitely something going on with the lower 2/3 of my body as a result of the sympathectomy.  
    Hands:  The extreme dryness persists.  It is still problematic for me and uncomfortable.  I have experimented with several lotions at this point.  Hands down, the best hand lotion for this is "O'Keeffe's Working Hands Cream".  You can buy this stuff almost anywhere.  It stays on the longest and does the best job.  Highly recommended.  
    Feet:  My feet definitely sweat more than they used to.  For the first few days after surgery I remember they were completely dry, but then my body decided "F that" and they began sweating.  It isn't horrible or anything, but it is worse than before surgery and at the end of the day my socks are usually damp and need to be changed.   
    I am still 100% blush free.  It has been great from this standpoint.  It has done wonders for me in terms of relieving psychological stress.  I am now completely free of anxiety as well.
    My scars continue to slowly heal but are very still very visible.  I don't feel comfortable being without a shirt for this reason because underneath my armpits looks like kind of a mess.  I would still advice people to stay away from Dr. Port for this procedure.  
    Mentally I still feel the same.  There is no fogginess or anything like that.  My metabolism in my body is still the same.  In fact I have recently started doing some light exercising again due to a shoulder injury finally healing, and I have found that my physical stamina is the same as before.
    Overall the surgery was worth it.  There is no question that suffering from blushing for 16 years wreaked havoc on my life and the effects of that are something I now have to deal with and recover from as best I can.  I don't have friends and don't speak with family sadly.  But, at least I have some peace of mind from the blushing demon.
     
  7. Like
    scarface got a reaction from Steven in 4 months post ets   
    Thanks for sharing Steven.  How do you deal with being in hot weather then if it causes you to sweat?  Do you live in a cold climate or just avoid the heat?
  8. Like
    scarface got a reaction from brunette22 in Scheduled for ETS Redo on 06/16/17   
    I am scheduled for a redo ETS with Dr. Port of Weill Cornell Medical Center in New York City next friday (06/16/17)
    Although I have been through ETS before, and have been bracing myself for a redo operation for several years, I am still deathly afraid of getting it done again.  I am having last minute cold feet, second thoughts, serious doubts, etc.  
    My consultation with Dr. Port was very quick as I assume he is busy.  He made no promises of a good outcome and explained to me the increased risks associated with redo ETS procedures.  Although I am well aware that he was only being honest, it still would of been nice to hear some encouragement.  Hope for the best but plan for the worst, as he so put it to me.
    I have already scheduled a day off from work for next friday and I am making my travel plans right now.  I will keep you all updated.  
  9. Like
    scarface got a reaction from brunette22 in Scheduled for ETS Redo on 06/16/17   
    Day 15
    My body is still healing.  The numbness in my chest is very slowly subsiding but is still quite present.  My scars are getting smaller but they will probably remain conspicuous for several years to come due to their locations and the size of one of them.
    I definitely have CS on hot and humid days when I am outside exerting myself.  We are having temperatures in the 80's right now and when I am out and about my trunk, lower back, and legs can get severe.  My underwear gets very damp but my pants don't bleed through.  My shirt however can bleed through around my stomach and lower back area.  It is not a huge deal and it is manageable, but it is bothersome and quite strange having only the bottom half of your body sweat while the upper half (from nipple line up) is totally dry.  However, as soon as I stop exerting myself or go into a cool air conditioned room my sweating stops very quickly.  Also, I learned a little trick which may seem funny: since my hands stay very dry, on hot days I can just reach under my shirt at any time and touch my stomach to quickly moisturize my hands.  I don't have to worry about carrying around moisturizing creams.    
    I still have a strange feeling that my chest muscles are in a slight state of contraction but, like the numbness, it seems to be gradually going away or perhaps I am just getting more used to it.  I also still have the "arch" impression across my chest although it too seems to be very gradually fading.
    No blushing at all.  Mentally, I am finally at peace with myself since I am free of the blush related anxiety.  We had a meeting at work on Thursday this week at 4pm.  Normally, I would spend the entire day dreading that meeting.  However, I had no such dread.  I was barely even thinking about the meeting.  When it was getting close to 4pm I calmly just went to the conference room and sat down and was totally relaxed.  Attention was brought to me 1 time and I handled it with total comfort.  
    Overall, I am satisfied so far.   
     
  10. Like
    scarface got a reaction from brunette22 in 10/4/2017 MICRO ETS SURGERY   
    Let us know how you’re feeling.  Who was your surgeon?
  11. Like
    scarface got a reaction from brunette22 in ets surgery in manchester england on the 6th september on the nhs   
    How are your hands?  Are they extra dry?  Any numbness anywhere?
  12. Like
    scarface got a reaction from brunette22 in Scheduled for ETS Redo on 06/16/17   
    I measured my heart rate several times before surgery and it was always between 70-75.  Post operatively when I was in the recovery room my HR was consistently between 65-69 each time the nurse checked it. 
    And now that you asked, I just checked my heart rate a few times and it was 54-56.  So it does seem to have dropped.  
  13. Like
    scarface got a reaction from brunette22 in Scheduled for ETS Redo on 06/16/17   
    I've thought about this and have changed my mind a few times.  As of now, my opinion is that if I could go back I would of just gone straight to Dr. Nielson and had Micro ETS the first time....very minimal, almost non-existent scarring and the cauterizing completely severs the nerve.  The clamping is good theoretically due to reversal possibility if the side effects are bad.  An in fact for me my clamps fell off by themselves and I did have a full reversal.  But, that only meant that I had to go through the entire ETS process again, had to pay money for the surgery again, and this time the procedure was more risky since it was a re-do.  My suggestion is to EXPECT that you will have bad side effects and THEN make up your mind as to whether or not the trade off is worth it.  If the answer is yes, then get ETS with cauterizing and preferably with a surgeon who will do it with the Micro/Needlescopic approach.  If it's not worth it to you, then don't get ETS at all.  
  14. Like
    scarface got a reaction from brunette22 in Blushing ONLY by social interaction anyone else? no flushing at all   
    I would only blush in social situations.  I would get flushed from excessive exercise but facial flushing never bothered me at all.  
  15. Like
    scarface got a reaction from brunette22 in Scheduled for ETS Redo on 06/16/17   
    Titanium I believe.  Dr. Port said that the lungs can rub against them each time you breath and over time they can work themselves off.  I'm not sure what he meant when he told me that he "couldn't see them".  I mean they must of been right in the vicinity of where he was working.  Odd way to phrase it I think.
  16. Like
    scarface got a reaction from brunette22 in ETS Surgery very soon   
    Any updates?
  17. Like
    scarface got a reaction from blushingman in Scheduled for ETS Redo on 06/16/17   
    Day 101 (~3 months post ETS)
    I've seen a considerable improvement with my dry hands.  Specifically, the dryness is still there but I have gotten used to it.  I can now write on paper and grab things without even noticing the dryness.  I have adapted to it quite well.   
    Chest is still numb.  I think it's safe to say at this point that feeling will not be returning.
    Not a single blush since the operation.  I am very happy about that.  My anxiety levels have been at an all time low and subsequently so has my level of stress in daily life...I can almost feel the difference with the lack of cortisol (stress hormone) circulating in my blood.  No joke, I am much more easy going these days.
    Scars are very slowly healing but are still prominent.  I continue to be dissatisfied with Dr. Port's work from a cosmetic standpoint.  I feel self conscious about the scars and about doing things like taking my shirt off at the beach or when with a girl.  It makes me mad how little consideration he gave to doing a clean job.
    The "arch" impression is completely gone.
    The CS, or reflex hyperhydrosis as I like to call it, is still a problem in hot weather.  Today it was 90 degrees and my sweating was severe.  All I did was step out to my car and take a drive to the store and then walk across the parking lot.  Within 15 minutes of being outside, sweat was dripping down my back, stomach, crotch, butt, and legs.  My underwear got pretty soaked.  From observation over the last 100 days, I have concluded that 80 degrees is my "trigger temperature" where I start to notice excessive sweating.  Any hotter and the sweating gets worse, any cooler and the sweating drops off drastically.  This is by far the biggest drawback.  I had planned to cut down on bodyfat to 10-12% but have been busy and have not be able to go to them gym.  It is still on my to do list though and I will update with results when it happens.  
      
  18. Like
    scarface got a reaction from lilcasey30 in Lexapro.. my last option   
    If the Lexapro doesn't work, you should try getting a prescription for Xanax which you can take about 20 minutes before a sales meeting and it should kick in quickly and eliminate the propensity to blush for a few hours.  If that doesn't work or is too impractical, then consider ETS.
    Ill be the first to say that although ETS is not "the answer" for us, it is nonetheless "a solution".  Everyone here understands your suffering.  Many on this forum have had good results with ETS, me being one of them.  Every blushing moment that I get through without blushing is like a small victory for me. My blushing related anxiety is 100% gone as well.
  19. Like
    scarface got a reaction from blushingman in Lexapro.. my last option   
    If the Lexapro doesn't work, you should try getting a prescription for Xanax which you can take about 20 minutes before a sales meeting and it should kick in quickly and eliminate the propensity to blush for a few hours.  If that doesn't work or is too impractical, then consider ETS.
    Ill be the first to say that although ETS is not "the answer" for us, it is nonetheless "a solution".  Everyone here understands your suffering.  Many on this forum have had good results with ETS, me being one of them.  Every blushing moment that I get through without blushing is like a small victory for me. My blushing related anxiety is 100% gone as well.
  20. Like
    scarface got a reaction from blushingman in Scheduled for ETS Redo on 06/16/17   
    Day 30
    Arch impression across my chest is 95% gone.  Chest numbness remains but I'm used to it now.  Scars are still big and noticeable and I am not satisfied about that.  Dr Port could of done a much cleaner job.  
    Hands are still dry.  Once thing I should point out is that the dryness isn't just on the superficial outer layer of the skin.  The dryness is more of a dehydration of the entire thickness of the skin.  Sometimes I look at my fingertips and they slightly pruned like you would see after spending too much time in a swimming pool.  So this tells me that my body is just not delivering much moisture to my hands at all.  I am getting used to it still but obviously I would rather this wasn't happening.  I have found the Vitamin E oil stays on my skin longer than the coconut oil so I have been using that more often.  Hand moisturizing creams are ok but the ones I have tried I've had to apply very often because they wear off quicker.  
    The sweating hasn't been too bad but then again that may be because I have avoided being too active since it is hot outside.  I did have an episode last week where all I did was walk to the grocery store a few blocks away and by the time I got there my underwear was wet from moderate to severe sweating from my crotch/groin/butt.  I was not happy about this.  Basically every time I have gone outside and exerted myself my lower body started to sweat more than I think is acceptable.  Because of this, I agree with the notion that a more appropriate term for this is "reflex hyperhydrosis" rather than "compensatory sweating".  The reason I say that is that there is no way I am sweating an equal amount on the lower 2/3 of my body now than I was on my entire body before surgery.  The amount of sweat on my lower body is more than the amount of sweat all over my body was before surgery.  The good news is that my sweating stops immediately if I cool myself off.  Also, I have noticed a big decrease in sweating in my groin/crotch/butt if I don't wear underwear and this also seems to help with the sweating from my stomach and lower back area.  So, I just haven't been wearing underwear for the last week and it hasn't been as much of a problem when I walked somewhere.  Not wearing underwear keeps the area cooler and allows better ventilation.  Another thing I am going to try is losing bodyfat.  Right now I would estimate I am around 15-16%.  I will try to get down to about 10-12% and see if there is any improvement.  Avoiding coffee also seems to help a little but I haven't given it up yet. 
    My mentality, energy levels, metabolism, etc. is all the same.  I feel exactly the same except for the problems listed above.
    One study I found recently showed that CS was much lower on ETS patients when the procedure was done on one side only, and then the other side was done 4 months later:  This study was for patients with hyperhydrosis, not blushing.  However the T2-T4 ganglion were cut, so i'd imagine blushers would have similar results since T2 is targeted for blushing.  This newer technique seems to be an improvement in ETS surgery.  It will cost more to have 2 separate operations, but the rate of CS was much lower.
    As for me, I am hoping my dry hands and sweating improves.  I have found a handful of studies which said that about 50% of patients report that their dry hands improve with time, and that some patient's report an improvement of sweating with time and that generally speaking, the first summer after ETS is the worst one.  All I can do at this point is keep a good attitude, stay healthy, and keep my fingers crossed that I see improvements.
    I was hoping I'd have mild side effects again like I did the first time I had ETS 8 years ago but for some reason my body reacted more aggressively this time around.  The problem is that, much like the blushing and the avoidance techniques from social situations, I am now still using avoidance techniques with regards to hot weather and not exerting myself and I also find myself avoid touching certain things like paper because the dryness is uncomfortable.  Overall, I'd say it was a pretty even exchange in terms of trading blushing for other problems.  
    Would I suggest ETS to others?  3 weeks ago I would say definitely yes because my side effects were low.  Now, I would say that it depends.  When I was in high school and college, essentially a point in life when I was forced to be in very difficult social situations every damn day and was frequently forced to speak up in front of my peers, then not blushing would have been a total godsend.  But where I am in my life now, the blushing was not nearly as big of a problem.  The worst was behind me.  Sure, it sat latent inside of me and would rear it's ugly head whenever the situation provoked it, but overall I was at a point in my life where things were more on my terms.  What I mean by this is that I was no longer being forced to sit in rooms and interact with people, do presentations, etc.  I was basically going to work, keeping my head down and doing my job, and then going home.  When I would go out and about town, my blushing wasn't bad at all because I felt free.  One of my goals in my life was to be an entrepreneur, and should I work towards this and succeed then life would essentially be on my terms 99% of the time since I am no longer an employee forced to do the things my employer tells me to do.  
    So then why did I get ETS?  The main reason I got the surgery done was to be a guinea pig.  I had resolved several years ago that I would never have children due to this condition being hereditary and I could not in good conscious bring someone into this world knowing how badly they would suffer from blushing.  But ETS was an opportunity for me to justify having children.  I reasoned that perhaps the genetics for blushing would not be passed on to my kids, and even if it was, then if I responded well to the ETS then more than likely my children would respond well to ETS too and so having children was ok for me.  Due to how my body responded I am not so sure anymore.  Furthermore, I'm now thinking that our understanding how genetics combine and express themselves is too weak for my conjecture to really hold much weight.  Regardless, I am hopeful that a better solution will be found.  I also think it would help my kids tremendously in dealing with this problem if I were to be a supportive parent since I know what it is like.  I also believe in the fighting human spirit to prevail despite the issues we have.  For these reasons I am going to stay open to the idea of having children so long as I met the right woman to start a family with.  As I said I don't think ETS is a long term solution for us blushers.  The procedure needs to be improved to minimize side effects to very low levels in order for me to agree that it is a good solution.  I am very curious if the nerve really needs to be cut at the location of the T2 sympathetic chain.  I have tried to find pictures tracing the nerve AFTER the T2 ganglion hoping to spot perhaps a point where it bifurcates, with one going to sweat glands and the other going to the blood vessel capillaries of the face, but have had no such luck.  If something like this bifurcation could be found, then maybe the nerve going to the capillaries could only be cut and we'd see a tremendous decrease in side effects.  As it stands now, we are taking a very generalized approach at stopping the blushing, essentially burning down half of a forest to kill just a few trees we want to target.  The only other solution I can think of would be to find a way to genetically engineer people to not have this problem.  I see much difficulty in this because blushing is a very complex problem.  It is perhaps as much psychological as it is physiological and finding a specific genetic blueprint for the patholigica/excessive blushing phenomenon would be hard.  Perhaps we could just target the blushing gene altogether then and find a way to delete it from our genetic profile.  I don't see much harm in this.  I think there are people out there who go their whole lives never blushing and they are perfectly normal.  Everything I have found about genetic research into this has been aimed at hyperhydrosis, but us blushers will hopefully piggyback somewhat off of their findings.  
    I will be checking this forum every once in a while to see if anyone has questions or contributions to the discussion.  My next ETS update probably wont be until I am around the 3 month mark.  
  21. Like
    scarface got a reaction from Minnock1 in Scheduled for ETS Redo on 06/16/17   
    Day 15
    My body is still healing.  The numbness in my chest is very slowly subsiding but is still quite present.  My scars are getting smaller but they will probably remain conspicuous for several years to come due to their locations and the size of one of them.
    I definitely have CS on hot and humid days when I am outside exerting myself.  We are having temperatures in the 80's right now and when I am out and about my trunk, lower back, and legs can get severe.  My underwear gets very damp but my pants don't bleed through.  My shirt however can bleed through around my stomach and lower back area.  It is not a huge deal and it is manageable, but it is bothersome and quite strange having only the bottom half of your body sweat while the upper half (from nipple line up) is totally dry.  However, as soon as I stop exerting myself or go into a cool air conditioned room my sweating stops very quickly.  Also, I learned a little trick which may seem funny: since my hands stay very dry, on hot days I can just reach under my shirt at any time and touch my stomach to quickly moisturize my hands.  I don't have to worry about carrying around moisturizing creams.    
    I still have a strange feeling that my chest muscles are in a slight state of contraction but, like the numbness, it seems to be gradually going away or perhaps I am just getting more used to it.  I also still have the "arch" impression across my chest although it too seems to be very gradually fading.
    No blushing at all.  Mentally, I am finally at peace with myself since I am free of the blush related anxiety.  We had a meeting at work on Thursday this week at 4pm.  Normally, I would spend the entire day dreading that meeting.  However, I had no such dread.  I was barely even thinking about the meeting.  When it was getting close to 4pm I calmly just went to the conference room and sat down and was totally relaxed.  Attention was brought to me 1 time and I handled it with total comfort.  
    Overall, I am satisfied so far.   
     
  22. Like
    scarface got a reaction from redzio in Scheduled for ETS Redo on 06/16/17   
    Day 3
    So far so good.  There is still some soreness in my chest and there is also a feeling of chest "tightness" which I suppose will go away with time.  The skin on my upper chest is still completely numb.  I am still in the hospital and will be getting discharged in a few hours.
    Last night after a cup of coffee I started to experience moderate CS on my feet.  The episode lasted about 1 hour then stopped.  This morning I had another cup of coffee and no sweating on my feet at all.  Weird.  Hands have remained warm and dry the whole time.
    Last night and this morning I was walking around the ward where I and all the other post surgery patients are held.  I ran into a few groups of nurses and experienced what would of 100% been blushing episodes since I was put on the spot in front of a few females.  NO BLUSHING.  Not even a creeping feeling of a blush coming on.  The anxiety associated with it has instantly lifted as well.  I was able to walk around freely and had no problems being around groups of people.  
    Regarding my mental status, I have been getting doses of pain medication every 6 hours or so.  I believe the medication is causing some nausea or something along those lines because I still feel that mentally I am in a slight fog.  It is hard to think clearly the way I used to...perhaps I am just distracted by the slight pain/tightness in my chest, the medication I'm taking, and am still overwhelmed by this whole experience.  I believe i'll have to just go back home see how I feel once I'm back to my "baseline" lifestyle.  
  23. Like
    scarface got a reaction from Minnock1 in Scheduled for ETS Redo on 06/16/17   
    As it was told to me by Dr. Port, the biggest risk with redo ETS has to do with lung adhesions.  The surgeon has to spend time cutting the lung tissue away from the chest wall and it is possible to puncture a hole in the lung when doing this.  He said in this case I would probably have to stay in the hospital an additional 2-3 days.  Doesn't sound so bad.
    I'm very sorry to hear that you had both T1 and T2 cauterized and you still blush.  On the one hand I would feel heartbroken, but on the other hand you are forced to find another way forward.  My decade and half of blushing hell certainly built some character in me.  Have you tried medication?  The reason you may continue to be blushing is that you may have Kuntz nerves that were missed.  Seriously I'd talk to Dr. Nielson about it and see what he says. 
  24. Like
    scarface got a reaction from Minnock1 in Scheduled for ETS Redo on 06/16/17   
    I am scheduled for a redo ETS with Dr. Port of Weill Cornell Medical Center in New York City next friday (06/16/17)
    Although I have been through ETS before, and have been bracing myself for a redo operation for several years, I am still deathly afraid of getting it done again.  I am having last minute cold feet, second thoughts, serious doubts, etc.  
    My consultation with Dr. Port was very quick as I assume he is busy.  He made no promises of a good outcome and explained to me the increased risks associated with redo ETS procedures.  Although I am well aware that he was only being honest, it still would of been nice to hear some encouragement.  Hope for the best but plan for the worst, as he so put it to me.
    I have already scheduled a day off from work for next friday and I am making my travel plans right now.  I will keep you all updated.  
  25. Like
    scarface got a reaction from Charizard in Scheduled for ETS Redo on 06/16/17   
    Hey all.  I woke up a few hours ago.  So far, so good except for soreness.  
    Dr. Port and some other members of the surgery team told me that everything went well.  My right side was easy, but my left had more adhesions so it took him longer to dissect that side and he had to make a new incision site to help him so I will have an extra scar on the left now.  Right now I am in the step down unit and have a drainage tubes in both sides due to bleeding.
    My biggest dread was waking up and feeling instantly that something is wrong like corposcindosis, severe CS, or anything really.  But honestly I feel pretty normal.  I have numbness all over my upper chest but it doesn't bother me that much.  My feet, lower back, and hands are all warm and dry.  No CS at all at this point but it is still way early.
    I asked Dr. Port if he removed the clamps and he said he couldn't see them so they weren't removed.  I read a lot about how foreign objects in the body like the clamps can really irritate the tissue and cause inflammation of the nerve (neuroma).  I was really disappointed when he told me that they aren't out since it would of given me a lot of piece of mind.  But he said that sometimes that clamps can fall off and who knows where they go?  So i'm hoping he couldn't see them because they fell off and aren't on my sympathetic chain but I will never know for sure anymore so I might as well just never think about it again.
    No blushing yet, but I haven't been in any blushing inducing moments.  As I said, so far so good.  I will take a look into a mirror when I get a chance to see if there is any horoner's sydrome.  
    Any questions just ask.  I am extremely thankful that I am one of the lucky patients...so far at least.
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