Coming across this forum just gave me so much hope! I’m a 19 year old female and I’ve had facial blushing and a blotchy red neck for about 6 or 7 years now. It took awhile for me to realize it was more than just “normal” blushing or heat exposure.
I’ve been to a couple psychologists, psychiatrists, dermatologist, and my primary doctor and no one could ever give me answers. I always assumed it was just a symptom of anxiety and it happened in social situations when I was nervous. After reading a lot of stories on here I truly believe It’s all a physical condition rather then psychological. I’ve had countless embarrassing moments in social situations and public speaking is the absolute worst for me. I think going through high school with this condition has wired my brain to thinking it’s psychological when its not. It’s frustrating that I’ve developed anxiety because of this. There have been so many times where I cancel on my friends or don’t go out because of this fear of getting red. It’s made my life really challenging. I’ve been so alone and confused about my condition because I also get all red when I drink alcohol or when I’m exposed to the hot sun.
I currently take propranolol (20mg) as needed If I know I’m going to be in a situation where I’ll blush or get a blotchy neck/chest. Discovering ETS on here gives me hope because I finally have more options. I’ve tried so much to manage or fix this and it’s not enough. I’m not one to make quick and risky decisions so I’ll definitely have to take a lot of time to consider ETS and all of the possible benefits/complications.