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FedUp77

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FedUp77 last won the day on October 8 2018

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  1. It's been over 2 years since me ETS (cut at T2) surgery: Blushing- 99% gone. Long stressful situations with a lot of consistent adrenaline pumping lead to a gradual splotchy creeping rash on my chest, neck and the right side of me face. If it's in a hot environment, it's quicker and easier to happen. Compensatory Sweating- Mild. Humidity brings it on. I do not drip sweat at all like I was doing in the early months after ETS. For the past 1.5 years I have stayed the same here, sweaty film after sleeping in the summer nights, slight sweaty lower back even at rest, if it's humid. Heart Rate- Averages around mid 40s, resting. I can work out fine, I feel fine, so I suppose this IS fine. Being a nurse though, I overthink this one still. I am hopeful that I will never have any bad outcomes from this side effect. Finger tips- Pruned 25% of the time. I've gotten used to it. Staying well hydrated helps, and lotion. Ultimately I push myself to do more at work, with speeches, presentations and so on. Yet sometimes when I am asked to present a big project or meet with the higher ups that dreadful what-If-I-blush feeling grips me. I now just say yes and hope for the best. Taking an antihistamine prior to these events seems to keep things at bay, who knows if it's even needed though! Weigh your options and know that there is no guarantee but quality of life is so important! Be Well.
  2. I always wondered if Anne Hathaway was a blusher from some of the scenes in The Devil Wears Prada. But if she is, it's cute and most likely super toned down compared to those who are here....
  3. FYI- Just in case I had it done at the cheaper hospital outside of NY for almost half the price. It went well and I certainly didn't need to possibly spend $25,000 to have it done in the fancy one! Good luck.
  4. Find someone who will be willing to submit the claim for hyperhydrosis instead of blushing. Dr. Gorenstein in NY, NY did this for me. I had to wait until after the surgery and the submission but luckily I learned a few months after that it was approved and I did not have to pay the $12,000 out of pocket.
  5. I too experience severe finger pruning and hand dryness and I was cut ONLY at the T2 level. So, I agree that although your operative report states that you were cut at T2 and T3 (of course your surgeon should have stayed faithful to your wishes) this has little to no baring on these resulting side effects. Hopefully that can help to ease your disappointment with this finding...although I completely understand your feeling misled still! Hope you find the answers you need.
  6. These don't look too noticeable to me, I wonder if people would even notice? I have 2 very obvious remaining red/purple rice grain sized raised scars right above my bra line under each armpit and I where bathing suits and nobody has ever said anything. If they did I have a plan to say I had a mole removed. I only hope that they wouldn't take notice of the one on the other side and ask about the uncanniness of their complete symmetry.
  7. We have matching hands! Mine are the same after having my T2 cut 1.5 years ago. It comes and goes though, somedays it's super sandpapery feeling and changes the sensation of touching things feels. My left hand seems more affected, and I still do blush rarely and much more gradually (but still obviously) when under severe stress. My remaining blushing seems more apparent on my right side. Hmmmm...I am thinking my nerves were cut in a slightly different spot on each side, the left being more effective than the right? Interesting. How's your heart rate? Mine dropped significantly: high 40s now and was high 50s before ETS.
  8. I have had a few people reach out to me recently asking me follow up questions and info about my level of ETS success this far out so I thought I'd start a new thread to say hi and let you know of my other post where I posted a lot of the nitty gritty. It's a real play by play and it's long, but it includes the little details of my ETS experience and a lot of the questions I am being asked can be answered by reading that. I just replied on that thread so it should be bumped to the top of the forum's list but if you are searching for it the thread is called: "My ETS story: from surgery day through recovery". My Update: t's been over a year and a half now since getting my ETS- T 2 cut by Lyall Gorenstein in NY. I'm a 40 year old woman, mother, wife and nurse. I suffered from increasingly bad blushing from the age of 18. My quick, annoying and life altering scarlet red face and neck blushing is gone. I can talk about myself without fear of that red heat covering my neck and cheeks within 1 minute. I can start an IV without looking as red as the blood that I am dealing with, I can live more freely and relaxed. It has been a great solution for me. There are some minor side effects as of now, and mentally the process of getting ETS was a severely tough one for me. But ultimately, I am happy I had ETS. I do not have any regrets this far out, and I hope that this is where my recovery/results will remain. Good luck to you all, I don't visit often and I am sorry for that but once you have taken the leap and put your hopes into a drastic measure like ETS, it takes so much mental fortitude to be able to "go back to that dark place" and read of all of your struggles. I hope you each find your solution and can live your best lives. Be well.
  9. It's been over a year and a half now since getting my ETS- T 2 cut by Lyall Gorenstein in NY. I'm a 40 year old woman, mother, wife and nurse. I suffered from increasingly bad blushing from the age of 18. My quick, annoying and life altering blushing is gone. I can talk about myself without fear of that red heat covering my neck and cheeks within 1 minute. I can start an IV without looking as red as the blood that I am dealing with, I can live more freely and relaxed. It has been a great solution for me. Everything I updated last time (above) is the same. I will say, the night sweat film is lessening gradually and that is a wonderful thing! Mentally I do get freaked sometimes. I am not big on speaking in front of large crowds and still finding myself avoiding these opportunities and getting that pit in the stomach feeling of knowing I'll go red. You know, that sinking anxious feeling. Because when these big time events happen I do still blush. It's certainly more gradual and less severe though. But it's there and patchy and noticeable. I think this is something I will work on in the year ahead, maybe some therapy, lectures on public speaking, audiobooks on gaining confidence and such. But ultimately, I am happy I had ETS. I do not have any regrets this far out, and I hope that this is where my recovery/results will remain. Good luck to you all, I don't visit often and I am sorry for that but once you have taken the leap and put your hopes into a drastic measure like ETS, it takes so much mental fortitude to be able to "go back to that dark place" and read of all of your struggles. I hope you each find your solution and can live your best lives. Be well.
  10. Exactly true. I had ETS 16 months ago and lost 30 pounds after having it done. I also started running again in that time. Both were intentional and I have worked hard to accomplish these goals but they weren't any harder than they would have been before having had ETS. Good luck!
  11. Well, it has been 1 year and 4 months since my ETS (cut T2) and I am officially pleased with my 95% blush free results. My neck and chest can still turn a scarlet red when under SEVERE stress. But not often, not randomly, not immediately, not frequently, not for no reason, not for long, and no longer on my face...at all. I'll take it. CS- I no longer have to use monthly applications of DriClor as my previous uses have cleared up any dripping sweat problem for me. I do still occasionally have a "film" at night when it's hot out, but that's minimal and tolerable. I also don't sweat from my neck up, not at all. It's weird, but other than the weirdness it's fine. Heart Rate- 54 just now, at rest. I am very in shape these days (more so than I have been in a decade at least), I have dropped 30 pounds and am running frequently. For those of you wondering about effects on metabolism and/or energy level/ability to be very active: ETS did not change me in these ways at all. I am a 40 year old woman and managed to get to a healthy BMI after having had ETS. Just wanted to jump in and say hi and wish you all well.
  12. https://psychologyinseattle.squarespace.com/2017-page-9/ (3rd episode down) This is a great listen. Very interesting to hear the PTSD relationship with some peoples' blushing anxiety and the different psychological therapies which can be used to try to eradicate it. Even more interesting for me to listen to this since I did in fact have relatively successful ETS surgery over a year ago but I still am so interested in this subject and the why behind my rare chest/neck blushing which still occurs when I am under extreme stress. Just wanted to share with you all. Be well and take care.
  13. I have the wrinkly finger tips too! Such a strange side effect, one that I had no idea might happen. I had my T2s cut 16 months ago and I'm pretty happy, slight blushing still, mostly just on my chest/neck in VERY stressful situation now only. Glad you had a good results too.
  14. I was able to get to the last page of ordering, they even calculated my shipping cost, and I'm in the states. Are you sure you can't order and have it shipped here?
  15. 1 Year Since ETS: Blushing: I don't blush as often nor as intensely anymore, and it's more gradual to build and sometimes just one sided (switches sides too, very odd). I am hopeful it will stay how it is now, since it's been about the same now for over 3 months. If I am having a stressful week at work I have an episode maybe twice in that week. Flushing: The flushing/splotchy scattered patches on my chest and up my neck that come when I'm on the spot or discussing something in depth and I'm turned to as the expert are bothersome and noticeable, but not severe in color (light pink) nor appearance (crawling spidery splatters). People notice, but often don't mention it, and they disappear within 5 minutes. Plus, I have really long hair which I can use to help hide it at times. A little update on the Side Effects: Sweating: Once monthly applications of DriClor have rid me of this side effect completely (and thankfully, as it was hard dripping sweat in meetings and in the middle of the night and not constantly wondering if I had made the wrong decision). Heart Rate: Steady at around 46 and I'm able to exercise with no issues (and I've just stopped checking it, I even bought a new fitbit that doesn't track HR and I'm blissfully unaware now). Finger Pruning: Still happens maybe a few times a week, but I'm certainly the only one to notice. Head Sweating: None, kinda miss it when it's super hot though. Gustatory Sweating: I haven't had any as of yet, hopefully that will continue. Scars: I had one incision in each armpit and 1 more below each of these. Those in the armpits have healed to the point where I can no longer even find/see them (great for tank tops and such). Both of the other incisions located about 3 inches under those (therefor where my bra band covers) are still rather red and raised, about the size of a horizontal grain of cooked rice. They're a bit tender and itchy at times but have gradually gotten lighter and smaller since surgery day and I hope they will continue to do so. That's pretty much it. Ultimately I am glad I went for it, ETS has helped me for sure, but it hasn't cure me. I wish you all well and will continue to pop in rarely to update you all. I have found not being on these boards to actually have been rather healing for me in the past few months and even this brief revisit has my mind going placed I'd prefer it not to go. Happy lives to you all!
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