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Everything posted by IJR

  1. I tend to find cotton vests and t-shirts to wear under other clothes from the likes of Burton in the UK are good in terms of being absorbent. Sports clothes like Under Armour are great for drawing sweat through to the surface, but as an under-garment that might not be want you always want obviously.
  2. Hi Kit. I'll probably get shot down by pro-ETS people for my comments, but I would just say think very, very, very carefully before ETS if you ever were in a position to go through with it. After more than fifteen horrendous years of side-effects, depression, anxiety and at times suicidal thoughts as a direct result of ETS, it is without doubt the worst and most costly mistake of my life. The side-effects sometimes do not start for several years, that's what people don't realise. My surgery was for hyperhidrosis however, not SA, but without a doubt, if I could turn the clock back twenty years and start again I would never have had ETS under any circumstances. The nerves that they destroy are vital nerves - we all have them, ours are just overactive, but they clearly serve many functions. Sorry if it seems like I'm trying to scare you and I'm not. Just think very carefully and do as much research as you possibly can.
  3. Hi Sweatier. Some people use botox injections for underarm sweating. There are also topical and oral medications, and last but not least iontophoresis. This apparently can be very effective for hyperhidrosis of the hands and feet in particular. In terms of eBooks, I like to read eBooks about positive thinking and reducing anxiety, because undoubtedly anxiety can sometimes make hyperhidrosis worse. I love natural remedies too, but unfortunately have not found anything helpful for hyperhidrosis. It might be an idea to visit your doctor about your condition if you have not done so already. Best of luck.
  4. Hi Sweatier. Same as always unfortunately. I was told by my GP about 14-15 years ago (when suffering with the side-effects of the surgery) that my condition would get better with time, but it's only got worse. I would still always advise anyone against surgery for hyperhidrosis, based on my own horrendous experiences, but I'm just one person of course, and clearly on here there are those who have benefitted from the surgery. All about personal choice. I just try to be as healthy as possible these days really.
  5. IJR

    Happy New Year

    Thanks Befree, really appreciate that. Yeah just everything the same really. Have stopped with the acupuncture now (besides a rare one as a treat, lol), but still doing everything else to be as healthy as can be, e.g. have kept the two stone off that I eventually lost, and try to continually improve fitness and nutrition. Also do things like voluntary work which has been a big help in working through the negativity (bitterness too if I'm honest!) that I felt for a lot of years towards the NHS. So all-in-all not too bad really. Glad to read elsewhere that things are going so well for yourself.
  6. IJR

    Happy New Year

    Thanks Befree, same to you as well. And apologies if I seemed a bit of a d**k at times in 2016. I guess we all have our own unique experiences of our conditions, and I've since learned to not spill my negative ones on here anymore, lol.
  7. Happy 2017 everyone. Here's to (hopefully!) a good year for us all.
  8. Sorry to hear that Befree. Must be very frustrating to put a lot of time in like that.
  9. Hi. I'm sorry to hear this. Botox injections are seen as most effective for excessive underarm sweating rather than sweating of the palms. However, there are options available. The best it seems is iontophoresis treatment. This can be very effective for excessive palm (and foot sweating). There are also medications available (but of course these can often carry side-effects), and topical treatments such as prescription-strength anti-perspirants, for example Odaban. There is also surgery, but as someone who's life has been severely damaged by hyperhidrosis surgery I would personally advise staying as far away from this option as possible. Good luck.
  10. I Would say yes partly. It feels like circulation can get pretty screwed up for example - my hands look slightly different in colour to each other (as do my feet). Hands about the same in temp though, whereas right foot colder than left. Sweating is extremely profuse in areas it shouldn't be, and non-existent in areas it should. Exercise personally is 20x harder than pre-surgery, e.g. not being able to sweat on face, forehead, scalp, neck, underarms, hands and feet.
  11. It wasn't a personal attack, I was just replying to your comment. I was referring to the 'excuses' comment and 'negative' people. If someone posts their genuine experiences I don't class them as negative or positive (regardless of what they say); it's simply their life experiences. I value everyone on here and (like everyone else) am grateful for the support. I would never deliberately knock anyone straight back down or disbelieve a person, and I am sorry to hear that you have experienced this Befree. Again, it was not a personal attack. I was just replying to your post. This forum is starting to feel more like walking on eggshells. Before long it'll become fragmented between people with good ETS experiences and those with bad ones, which I would hate to see and think would be a shame. It has the potential to see everyone supporting each other regardless of how their ops went. Like I said, I'm very glad for people like yourself who found it a cure.
  12. I agree Befree, in that if I had had a great surgery result I would not be using hyperhidrosis forums for support, I would be off living my life. However, I don't think it's fair to knock people who report bad experiences. Their opinions, experiences and honest views are as valuable to hyperhidrosis / facial blushing awareness as those who have positive surgery experiences. Basically, if I posted anything but negative surgery comments then I would feel dishonest; my quality of life was ten times better eighteen years ago before surgery, so I feel I must express this in an honest way, just to say look, ETS surgery is basically a game of Russian Roulette. You might be very lucky and have a great experience, or you could have you life destroyed. It's a colossal gamble, and one which in hindsight I personally would have never taken had I been given 100% of the information from the NHS that I should have been given, rather than 5%-10%. Don't get me wrong, I am very pleased to read about positive stories such as yours, but at the end of the day there are a lot of negative stories too, and I don't see any harm in both sides been expressed on sites such as this, so that those who have not been under the knife yet can make as much of an informed decision as possible. IJR
  13. For me, it's: Freakishly dry face, forehead, scalp, neck, underarms, hands and feet since the operations. Don't really get gustatory sweating, just heat build-up / flushing I guess.
  14. I wear under t-shirts and tank-tops all the time, but generally go for cotton ones. Tops like those produced by Under Armour 'wick' sweat from the body, but the problem with this is I find the sweat moves through these tops to the outer-shirt, so you end up with stained outer shirts. Cotton undertops however 'hold' sweat until it can dry naturally (not easy when you've got a top over it, but it does happen eventually!) so that a lot of times it doesn't filter through to the outer garment, thus helping you avoid the embarrassing sweaty back signs etc. Hope this all makes sense. Anyway, a company I use a lot is good old Fruit of the Loom, you can get like three cotton tank-tops for a tenner from eBay. Another great thing with wearing a tank top underneath (rather than proper t-shirt) is it means at least your upper-arms are free and cool (i.e. only covered by one layer rather than two), which helps ever so slightly with temperature regulation.
  15. Thanks Befree, really appreciate it. Yes, the only times of the year where I feel fairly comfortable is probably Oct-March. Basically it feels like I'm always another level above everyone else around me in terms of temperature, so a cold day is mild to me, a mild day is warm, a warm day is boiling...etc. Lol, well I actually managed another 1000 today too! For several years I believed that the side-effects had a bad effect on my energy levels. Now I'm not so sure. During those years (22-30 years old) I was drinking too much at times. This was for several reasons, inc been at uni for three years, and also a feeling of needing to make up for lost time (having not gone out much at all between 18-22 when a lot of others were doing so). However, looking back I think it was also self-medicating for feelings of depression, low self-esteem, and generally feeling 'different' and the odd one out in social situations because of my condition/s. My weight in summer 2005 was about eleven stone (aged 22). By summer 2013 I was thirteen-and-a-half stone (I'm embarrassed about this!), so in 2014 I decided to start taking action. I now go out twice a month maximum, and try to eat well and burn 2500 calories a week. Through this I've got my weight to eleven stone twelve pounds. I'd love to reach 11.5 stones, but I'm realistic and don't think I could be eleven stone again – the same weight at 33 as I was at 22 is probably not gonna happen eh. Anyway, the side-effects are very, very tough at times but I realise time cannot be turned back. As much as I sometimes perhaps do not sound like it on here I do try to live positively. I've kept up tai chi which I love, and do several self-help / self-care activities to try to improve my health and outlook as much as possible. I've stopped going for acupuncture for now. I absolutely loved it and psychologically it was a massive boost, but physically I just don't feel any different in terms of my nervous system, although I do think it probably helped my energy levels, and so if it helped me lose the twenty three pounds I've shifted so far then it feels like it was worth it. Hyperhidrosis and the side-effects can cause me a lot of isolation at times though. Standing in a room with people and knowing that few (if any) will have this condition can be difficult, even more so the side-effects because I would imagine that the percentage of people in the UK who have had any of these operations must be extremely low. Saying that I did see (in the acupuncture centre) a testimonial from a fellow sympathectomy patient, which I was really taken aback by.
  16. Apologies Befree, guess I was just feeling a bit low and fed-up. On the plus side I managed to burn 1000 calories at the gym earlier, so I try to not let the side-effects impact on my energy levels as much as possible.
  17. Because for at least the next six months I know I am going to have to go through the following (thanks to the NHS) Befree: - Severe compensatory sweating from my shoulder blades down, my stomach, chest, sides and legs - Little-to-no sweating through 'normal' areas; hands, feet, underarms, face, forehead, scalp and neck - All of this leads to unreal discomfort, overheating, flushed feeling, exhaustion, embarrassment, low-mood, and just generally feeling (in many ways) very isolated This is the honest picture for a post-ETS and post-LS patient. As I've said before, maybe life's not as bad with just having ETS, but damage from both operations is absolutely soul-destroying, and I seriously wish they would just ban the operations for both conditions. I'm sorry, this is not a knock, it's just how I feel.
  18. Can't say I'm looking forward to the supposed boiling hot summer we've got coming up in the UK. Wish I could enjoy it like I used to.
  19. Hi Mel. I've replied in another thread re ETS. As far as oxybutynin goes, I found it fairly effective for compensatory sweating, but the side-effects were just too much for me. I'm sorry to hear you've not had any luck with the other treatments. The best anti-perspirant I've found is Odaban, but to be fair this is similar to Drysol. Re iontophoresis, did they use robinul in the tap water? This approach is supposed to increase the effectiveness.
  20. That sounds very sensible to be honest. There are some members of this site who have had good results with ETS for hyperhidrosis and / or blushing. I had mine for hyperhidrosis, so I cannot comment on ETS for blushing, but if it's hyperhidrosis that you are considering it for there are many things to consider: - ETS involves the cutting or clamping of nerves. This can result in dry palms after years of wetness, which sounds fantastic (this was the case for me). However, the nerves that they cut or clamp (and bear in mind, even though clamping sounds safer because they can be removed theoretically, in reality a lot of people find that even after the clamps have been removed the nerves never fully recover) control so much more than just excessive palm sweating. I have found myself since the ETS unable to sweat through my underarms, face, forehead, scalp and neck (not just palms, which are also freakishly dry - like, you run on a treadmill for an hour and there's next-to-nothing there!). Been unable to sweat through all these 'natural' areas has really left me feeling screwed up. Temperature regulation is nearly impossible and just a horrible nightmare. - When you have ETS, you are very, very likely to get compensatory sweating, such as on the back, stomach, chest of legs. I have it on all of these areas and it's horrendous. Imagine been so dictated to and controlled by CS and it deciding what you wear, what colours etc all the time. I used to love summer even with wet hands. Now I despise it. - Once the nerves have been cut or clamped, there is basically no way to go back. I have spent thousands over the last decade trying to help the nerves heal (e.g. acupuncture, herbs, nutrition etc), but nothing. As difficult as things might seem at the moment, believe me - they can get much worse. There are some great non-surgical options out there, and I feel that's the way to go if it's for hyperhidrosis. These include: Botox Iontophoresis Oral meds Topical meds Like I said, please give it all a tremendous amount of thought, and good luck.
  21. Yeah it certainly is. Yes from what I can remember, but I'd say I lost a lot of ability when it comes to neck / face and head sweat. I'm really glad you still can Befree. You realise how important it all is when you can no longer do it.
  22. I'm risking getting shot down on here for my views, but as someone who had ETS and lumbar sympathectomy many, many years ago for excessive sweating I would say avoid it for this condition. Pre-ETS / lumbar sympathectomy it was my hands and feet that sweat massively. Over the last fourteen years I have had extremely dry hands and feet, but what many surgeons fail to tell people is that cutting or clamping those nerves affects your ability to sweat from other important areas too, such as the underarms, face, forehead, scalp and neck. While this might actually sound appealing, it leads to severe problems in handling temperature, e.g. a cold day for 'normal' people is now mild for me, mild is hot, etc etc. It can therefore really screw up your thermoregulation (among other things), and despite many years of school-yard bullying, embarrassment an anxiety about my dripping hands and feet my quality of life was undoubtedly ten times better before surgery than it's been since then. The side-effects can be devastating, and it really does seem like a game of roulette in terms of what your body and life are like after surgery. Therefore, I would advise against surgery for hyperhidrosis. I have nothing to gain by doing this, I just like to try and help people to not make the same terrible mistakes I've made, and again I'm sorry if my views offend anyone. Have you tried iontophoresis and / or Odaban by the way?
  23. Hi. I would be very careful regarding ETS personally (speaking as someone of experience!). If you do some thorough research and reading you will find that there can be as many negatives as positives with the procedure. Of course it is entirely your choice, but again just be careful and give it as much thought as possible would be my advice. Best of luck.
  24. IJR

    My story

    No worries at all, I'm always happy to answer any questions and help in any way possible. It sounds like you recovery and ongoing progress has been excellent then, which is great. I guess another thing is that medicine in the UK has progressed since I visited that dermatologist in 1998. Now with technology, the internet etc patients are probably a lot more informed, but I went in to the surgery with probably only 5%-10% of the information I needed in order to make a truly informed decision. Perhaps if I'd been born a decade later I might have worked out okay now eh, lol.
  25. IJR

    My story

    Hi Befree. Yes that's exactly it. Instead of sweating excessively on my hands and feet (as well as a 'normal' amount on my armpits, face, forehead, scalp and neck), I now have extremely dry hands and feet (as well as no longer sweating from my armpits, face, forehead, scalp or neck, which may sound great but trust me - it isn't!), but sweat an awful lot through the whole of my back, the stomach, chest, sides and legs. I agree. It's still promoted as a 'cure' for excessive sweating, but it honestly isn't - by cutting those vital nerves you are just moving the problem around. What really hurts the most is that I was referred by a dermatologist to a surgeon without ever been allowed to try all of the non-surgical treatments. Iontophoresis, I feel, would have been the real -life-changer for me instead of this horrible surgery, but oh well... It's mainly sweating problems, but I do get flushed (e.g. I always look redder on photos than my friends), but the near-constant feeling of overheating is a real problem too. I think they call it thermoregulation - the system in your body which controls temperature, such as by sweating, and mine must be really messed up, because to have ETS is one thing, but to have lumbar sympathectomy on top is just unreal. Believe it or not though I am trying to be positive despite all of this. It hurts like hell to know what your life could have been like knowing eighteen years ago what you know now, but unfortunately that's not how life works eh. I really do wish though that people were fully informed about ALL non-surgical options before been forwarded for surgery, e.g. I'd never even seen or heard the word iontophoresis until two years after my final op - how can the NHS be so incompetent and negligent?!! Yes I've seen your photos Befree, and considering how much walking you said you did that doesn't appear much CS at all. And again, bear in mind that my 'horror story' is a man who has had four lots of nerves cut rather than two, so of course my case is an extreme one! That's why although yes I would say my situation has got worse over time, I ws yourself to worry, because like I say, mine is probably the rarest of cases - I've never read about anyone else having both types done. And yes I'm from Yorkshire in the UK.
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