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About KariGrace

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  1. I didn't have any permanent redness on my face. When my face wasn't blushing, it was of "normal" color. So that I'm not sure. That sounds to me like some type of rosecea which is a skin condition not a nervous system disorder.
  2. There really is no advice I can offer you. I didn't change my lifestyle in anyway (if that is what you are meaning). It was like someone just flipped a lightswitch in my brain, which is kinda what happens anyway because they cut off all signals from your nerve to your brain. I went back to work a week later and realized my face wasn't turning red when normally (pre-surgery) it would have. Which then gives you more confidence to step outside your comfort zone, you start doing more and more and eventually you don't think twice about talking to a group of people or going to a party because your face doesn't turn red.
  3. Hi all, I used to come on this website A LOT. Like everyday. I had ETS surgery on May 23, 2007. It has been 1.5 years since the surgery and I am no longer affected by facial blushing in any way. I even have trouble remembering what the surgery was called which always gets me because it was something that haunted me for so long and I studied and researched it everyday. I had T1, T2, and T3 cauterized and have NEVER blushed or sweated since I was woken up from surgery. The only "side effect" I have from the surgery is if I eat anything that is really bold in flavor (sweet, spicy, etc. but mostly sweet stuff) my face will tingle a little. I really don't know where I would be in my life if I had not of gotten the surgery, as I most likely would have committed suicide because that is how bad it impacted me a daily basis. I am now happily married and am 6 months pregnant! =)
  4. Worldcreator, I had ETS in May of 2007 for FB and some minor HH. I had T1, T2, and T3 cut. I have none of those side effects that you speak of, so I think you should be a little more careful when warning people about ETS because you made it sound like everyone that will undergo ETS is FOR SURE going to have those side effects. It is different for everyone. And, for some people, FB is EXTREMELY damaging emotionally and mentally. And to be honest with you, I would rather have those side effects that you listed than to suffer from FB. If I didn't have the ETS procedure, I wouldn't even be sitting here typing this because I would have already committed suicide.
  5. KariGrace

    5 years post op

    I have to comment on your post because I get the same sensation when I eat foods with a lot of flavor in them, mostly sweet foods. It's very strange! I had ETS for FB back in May of 2007. I also had some sweating, mostly on my hands. Both the HH and the FB are completely gone. I actually just recently found out I was pregnant in mid-November. I had a miscarriage on November 30 when I was about 5 weeks pregnant. Not sure if it had anything to do with the surgery, but I did tell my OB doctor about the surgery and she does want the records from the surgery.
  6. Well, my insurance company did cover the procedure (it was a long hard fight to get them to cover it). They covered most of it, so I'm not exactly sure about how much the total cost was .. I want to say somewhere between $10,000-$20,000. But that also includes the anesthesiologist, the surgeon himself, the operating room costs, the many chest x-rays, meds, etc. I owe about $1,000 all together, which I am making payments to the hospital.
  7. I would most definetly consider a re-do. What nerves are they operating on? I have ETS in May of 2007 and had T1, T2, and T3 cut. It has worked for me .. no more FB.
  8. As many of you may remember, I had ETS surgery done on May 23, 2007 in Chicago, Illinois for SEVERE facial blushing and some sweating (mostly my hands). So here I am 7 months later to give you all an update ... oh, and for the record, I have no regrets and it was the best decision I have ever made. My hands do not sweat, they haven't since I woke up from surgery. Most of the time, they feel like any other normal person's hand should feel. However, sometimes they are dry and look white and cracked. Lotion solves that problem. That really only happens when I take a hot shower or do the dishes with hot water. Now for the blushing ... I don't blush EVER. The surgery did change my life for the better as far as faical blushing goes. I don't really ever even think about it much. I was actually telling someone about the surgery and I had forgotten what it was called! I couldn't believe that something so bad had tortured me for so many years and I had done so much research on the procedure and I couldn't remember what it was called! Anyway, I don't get "goosebumps" on my arms anymore, I just get the sensation of them being there but when I look on my arms .. I see nothing. I will comment and make a joke on it sometimes saying, "it's so cold out here if I could get goosebumps I'd have them!!". Also when I eat anything with a lot of flavor (spicy, sweet, sour, etc.) the left side of my forehead will sweat a tiny bit. So I have chosen to stay away from the foods that will do that to me. It's mostly sweet items, like cookies and such. That is the thing that bothers me the most. But like I said, I have no regrets and it was the best decision I've ever made. Another "side effect" from the surgery is the upper part of my right arm and my right breast is still slighty numb and will tingle when I touch it. Like when I am shaving my armpits, it feels extremely strange to do so because the upper half of my right arm will tingle. I don't really like to be touched in that general area because it just feels weird. Other than those few minor "side effects", I'm doing great. For me, it was a life changing experience. It feels like it's been so long since I suffered so much. My life would be totally different if I had not of gotten the surgery. I most likely would have commited suicide.
  9. All I am gunna say is .. Do what you feel is right because if I had listened to everyone else then I would not have gotten the surgery and I would have probably have committed suicide by now. I live a COMPLETELY different lifestyle and it has changed who I am in more ways than one. Also, regarding the insurance company .. they will cover it if it's "medically necessary". Get the operation "pre-certified" so you will know going into the surgery if they are going to pay for it. PM me for all those details because I can aide you on the financial aspect of the operation.
  10. Hey all, I haven't been on here in a while. But I used to flush really bad when I drank alcohol prior to having ETS. Now post-op, I don't get it anymore. Hmm?
  11. I just wanna say I had T1, T2, and T3 cut for FB only and it was the BEST BEST BEST BEST BEST decision I've EVERRRRRR made in my life!!!!!!!! I've had the best times of my life after the surgery because I go out alllllllll the time and talk to anyone and everyone. My surgeon cut T1 literally with scissors and then cut T2 and T3 with that cautery tool thing. He also destroyed the kuntz nerves. I have no side effects. I do have some sweating, CS, which I don't think of as a side effect, just a trade-off. It doesn't bother me one bit .... and I would take that any day of my life over FB. FB destroyed me for a very long long long long time and I'm 100% cured now because of the life-changing decision I made to have ETS!!!! I pretty much love my life and I rock!!!!!!!!!!!!!!!!!!!!!!! =)
  12. Thanks again, everyone. I know I took a huge risk and had no clue what the outcome was going to be ... I just had hoped it was going to be good. I'm glad I did what I did and I would never in a million years take it back for anything. I truely hope everyone can be cured one day of this awful discusting disease because I know exactly how it feels and it tore me apart everyday of my life for a very long time. I hope everyone finds some kind of treatment that works for them weather it be surgery, make-up, medications, therapy, or whatever ....... it kills me to see people suffer from this because it f**ks with your head soooooo bad!!!!!!!!!
  13. Yeah, I have no clue. But I did have T1, T2, and T3 cut without any side effects including horners.
  14. My surgeons name is Dr. Norman Snow who is a cardiothoracic surgeon. He operates at the University of Illinois at Chicago hospital. HE ROCKS!!! And, Cursed, I know that having T1 cut is risky due to the fact that you can get horner's syndrome ... but I didn't even think about that at all. I guess you could say I'm a risk taker! =) haha ... but anyway, horner's syndrome can easily be fixed with cosmetic surgery. Yeah, it would be a pain in the ass to have to go thru that but IF you did get horners syndrome ... it's fixable. I was wayyyy more afraid of not waking up from surgery than anything else. I was VERY nervous about that!! But I took the chance and went thru with it and I am more than happy that I chose what I did. And BobBear + everyone else, thanks for the kind comment!! MUCH appreciated!!
  15. Cursed, Yes, having T1 cut is a risk due to horner's syndrome. They used the cauterizing tool thing to cut t2 and t3 and they cut t1 physically with a pair of surgical scissors. They also destroyed the kuntz nerves as well. I can give you all of my surgeon's information if you ever want it. Just PM me. He's a great man who truely cares for his patients and not just about making money ..........
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