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Showing content with the highest reputation since 08/17/2018 in all areas

  1. 3 points
    It's been over 2 years since me ETS (cut at T2) surgery: Blushing- 99% gone. Long stressful situations with a lot of consistent adrenaline pumping lead to a gradual splotchy creeping rash on my chest, neck and the right side of me face. If it's in a hot environment, it's quicker and easier to happen. Compensatory Sweating- Mild. Humidity brings it on. I do not drip sweat at all like I was doing in the early months after ETS. For the past 1.5 years I have stayed the same here, sweaty film after sleeping in the summer nights, slight sweaty lower back even at rest, if it's humid. Heart Rate- Averages around mid 40s, resting. I can work out fine, I feel fine, so I suppose this IS fine. Being a nurse though, I overthink this one still. I am hopeful that I will never have any bad outcomes from this side effect. Finger tips- Pruned 25% of the time. I've gotten used to it. Staying well hydrated helps, and lotion. Ultimately I push myself to do more at work, with speeches, presentations and so on. Yet sometimes when I am asked to present a big project or meet with the higher ups that dreadful what-If-I-blush feeling grips me. I now just say yes and hope for the best. Taking an antihistamine prior to these events seems to keep things at bay, who knows if it's even needed though! Weigh your options and know that there is no guarantee but quality of life is so important! Be Well.
  2. 2 points
    I had vicious facial blushing for the first 42 years of my life, which led to all the usual - and some! SAD, GAD, Major Depressive Disorder, living as a hermit. I had surgery with Mr Roger Bell (t2-t4 sympathectomy). I have virtually nil side effects, sometimes a little sweating on the back. The interesting thing is that I have phantom blushing. I thought for 18 months that I WAS blushing. Then during ferocious 'blush' consulted a mirror. PALE AS A GHOST! NOT KIDDING! Totally fu***** cured. I would recommend this guy to anyone. He is humble, friendly, understanding and damn good at his job. He's performed the procedure now over 1000 times. For anyone in Australia, he's your guy. I realise that my outcome from surgery is, particularly with respect to absence of side-effects, a somewhat rare one; but God put an end to your misery - which was my misery for 42 years - and have the operation with someone in your country. Or if you're in Australia, I can only say good things about Mr Bell.
  3. 2 points
    Thanks for all of the messages and support guys, I'm currently speaking to one or two people from this site, which is great as I don't have to go through this journey alone. 🙂 (I feel it would make things more difficult and confusing if my family and friends knew) I have my consultation booked for the 18th of march, a little more than a week away. I was feeling quite nervous and stressed about the hole situation a few weeks ago but since having read things on here and speaking to people on here and also booking the consultation, I feel positive and almost normal about it as other people have gone through the same process, and I can hopefully rid myself of this restriction in my life and be able to do different things without having this barrier. FB hardly ever happens since I have been on propranolol and then onto bisoprolol and now only on sertraline, yes it helps alot with FB but I don't want to be on prescription drugs for any longer as even though I'm getting places in life, like friends, work etc, life just doesn't feel authentic and natural, in my experience anyway. I have tried to come of these prescription drugs a few times in the past but FB came back, like I'd just be sitting there at work and around 5 or 6pm I'd start getting a racing heart, sweaty hands and feel FB coming on. Like can you not I'm trying to work!🙄😄😒 Something's challenge us in life and you've just got to try your best to solve the problems I guess. I just wanted to touch on that as I feel it's something I left out on my first message. Thanks
  4. 2 points
    phs67

    ETS T2/T3 Cut (Sept 2017)

    Day 371 update FB - Nothing. CS - It's been just over a year since my ETS surgery so I have experienced all of the seasons and hopefully all of the side effects of the surgery. The only side effect is mild/moderate CS in very warm and humid conditions. I have not been abroad since ETS so that would be a more extreme test. One other thing is that in stressful situations I can sweat more on the bottom of my back, the same locations as when I am in hot or humid conditions. I believe that as this happens even when it is not very warm or humid, it is just a bit of anxiety left over from pre ETS and in future may get better as I learn to cope with stress better. If it doesn't then it's not the end of the world as it doesn't happen very often. I do believe the CS in hot and humid conditions is here to stay but I can cope with it no problem. Much easier to cope with a bit of CS now and again than FB 24/7. Overall - Would I go back to pre ETS and take my money back? Not a chance, still delighted with the results. phs67.
  5. 2 points
    Gypsey

    I'm having ETS next week

    I promised I’d come back and let people know how I’m doing post ETS surgery, so here it is... best decision I ever made!!! I no longer blush and as a result am much more confident and happier. I don’t think/worry about blushing any more, which was exhausting. Side effects: my hands are a bit dryer, so I carry around hand moisturiser. If it’s really hot with no breeze my back sweats. This is really only an issue in the summer, and it’s very manageable. The more time passes, the less I notice the side effects (it’s been 16 months since my op). Before my operation I came to this site and read lots of negative things about the op and side effects. It’s important to remember that it’s more rare for people to come back and talk about the positives because they’re busy getting on with their lives, and people who had negative experiences or that aren’t coping with the side effects are more likely to come and talk about it here. It’s useful to learn about the side effects, but don’t let the messages scare you. Stay well informed and make a decision that feels right for you.
  6. 1 point
    zeroblush

    Some questions about ETS

    Hi surfsuncali I gave a glowing account of my experience with ETS. Here are some points related directly to your situation: 1. Obviously the sympathetic nervous system is there for a reason - not just to allow us to blush. But an overactive system can cause elevated heart rate, and BP. My heart rate was bang on 100 prior to surgery. Luckily the ABSENCE of the other 'uses' of SNS i.e. after it has been severed, WORK IN FAVOUR OF THOSE WITH ELEVATED HEART RATE AND BP PRIOR TO SURGERY. My pulse is now around 70, and my blood pressure a little lower than before. (I have become fitter as well, so not all drop in heart rate is attributable to surgery.) 2. As I exercise I remain pale. I cannot make my face red, other than by standing on my head basically. And certain medications bring on a bit of colour. When I work out I get a bit of sweating on my back. But if I fixate on it - rather in the manner that someone tries not to blush - it comes on stronger. This happens one day in 50 or so. 3. The results have very much lasted for three or so years now; there seems no way that a severed or ablated nerve can spontaneously re-connect. In fact the problem is more that the procedure cannot be reversed! (For those unhappy with it) 4. As I mentioned in my story, I had phantom blushing - the full on experience of a blush; but face pale - for some years (!) before I realised that my face was pale. That is a bit rare. Now - for the last year or so - that I know it's a phantom, these sensations of blushing have faded. Because I'm secure in the knowledge that my face is pale, the phantom blushing is diminishing pretty rapidly 5. I'd avoid the clamping method, which allows a theoretical possibility of being undone. But I don't think it has really ever been successfully undone, and just creates complications. Why not just 'fry' the bastards, and be rid of your problems.
  7. 1 point
    S_S

    Cure for 95% of blushing

    Hello, I've found something that seems to be working to prevent me from blushing in 95% of the scenarios that I normally would have. It's not perfect, and that's still frustrating, but I wanted to share nonetheless because I was at a point of deep despair before I found this, and it's made a HUGE difference. I can't believe I suffered for so long without it, and now I can never imagine going back to how I was before. What's been working for me is a supplement called 5HTP (5-Hydroxytryptophan. It is a naturally occurring amino acid and chemical precursor to serotonin and is available over the counter. I've been taking it for about 10 months, and during that time, I've played around with the dosage a little bit. The recommended dose for the brand I'm taking is 200mg. After instances where I would blush (much fewer and farther in between now), I felt like maybe I wasn't taking enough, so I doubled the dose and took 200mg in the morning and 200mg at night. It made me a bit nauseous and didn't seem to help any more than the original dose was already helping, so I went back to just taking 200mg in the morning. I noticed an improvement initially within the first 1-2 days, it was crazy. I felt like I had won the lottery. Finally, after years of negative self-hatred thoughts and suffering so much from blushing, I finally have some reprieve. Recently, I've also started taking L-Theanine (200mg) at night before I go to bed. It's found naturally in green tea and is taken to promote relaxation and restore a sense of calm. I don't think taking it alone would do much, but it's an excellent supplement to the 5HTP and I feel like it's helping me overcome my fears in the last 5% of scenarios where I was still feeling uneasy and anxious. If you're reading this and you're at your wits' end, I've been there, and this might help. It did for me, so it's certainly worth a try. If this doesn't do the trick for you, don't give up. Keep searching for something that works. I'm not a doctor but I believe that my brain has always been chemically imbalanced and that's what was causing the blushing. After seeing the 5HTP work, I think it must've been that I just wasn't producing enough serotonin. I'm putting myself out there now in ways I never would've imagined, I can speak in front of groups now without blushing, and the best part is that the positive reinforcement of living a normal life and not blushing in situations I ordinarily would have gives me confidence that it can continue that way. I don't fear blushing anywhere near as much as I used to, because I'm starting to build up the evidence in my mind that this is working, and I can trust this. I know what you're going through and wish the best for you. You CAN and WILL get a handle on this. There will be something that works for you. Do NOT give up. Best, S
  8. 1 point
    Blushingman, I have read through every word of the above and thank you tremendously for doing so. I believe my decision has been made. After 5 years now of having life altering chronic blushing with the most recent option failing due to extreme side effects (effexor), you are right life is short and to have something that makes you suicidal because you cannot cope is clearly not okay. I will be booking my consultation for ETS after years of floating on this group. Again thank you, I take yours and others comments on ETS on board along with the numerous papers I have researched. Time to take the risk, for I can go on no longer suffer the way I do. I will be sure to record my progress within this site, like thankfully many others have done to allow others to make a decision on what is best for them. I did have one question however, and apologise if it was covered above but don't believe it had been... Does having ETS in summer months in comparison to winter months during the 'body adjusting' period have any affect. I only say this as it will be likely I will be having this done in Summer (UK) and have read before that this can play a role in the level of CS.
  9. 1 point
    Thanks for great insight David. Your insight is highly appreciated I wish you a speedy recovery 😊
  10. 1 point
  11. 1 point
    Hey 🙂 the consultation went well, I was quite nervous but I eased into it after a while, plus he is easy to talk to etc, he will answer any questions you have, I got the train to London Euston and underground to st John's and Elizabeths hospital. Surgery is booked for 24th of April 🙂 hopefully all goes well, it's great having this site for support 😌 let me know if you have any questions flushy 🙂👍
  12. 1 point
    Hi David, Just seen your post - happy to be contacted if you have any questions. We’re all here for you. Beetroot Head
  13. 1 point
    Hope it goes well for you David! Let us know how the consultation goes, I think I'm ready to speak to Dr Greenstein myself!
  14. 1 point
    CA1234

    Ets finance

    Bigred what I naive comment. £6000 is a lot of money no matter who you are I got a loan through Tesco bank, was a decent interest rate, total cost was around £5.5k. But some companies offer better interest rates if you borrow slightly more £5000 was 10% interest but £7500 was only 5% interest
  15. 1 point
    former blusher

    Med Combo to stop blushing

    HI. I have tried various meds in the past, but I would suggest that anyone struggling try the following: Effexor XR 75 mg in the am + propranolol 60 mg extended release also in the am. This makes it easy to go to work, greet people in the elevator, etc. I was asked to do a speech in front of 250 ppl, and not a single blush. I never even raised my hand in school because this was so debilitating. I do not experience side effects. Just spreading the word to help anyone.
  16. 1 point
    Didi

    SGB injection

    I haven’t yet. It cost 1500$... will do update for sure if i’ll go. Thinking about ets but scared...
  17. 1 point
    liss

    10/4/2017 MICRO ETS SURGERY

    So, I came to check this forum because this October 4 will be a year of my surgery. So far, I am blushing free. I am enjoying my job and my life to the fullest. I made back those $12000. I don't regret the surgery at all. It's been a blessing for me to be able to work and live confident. Cons, the only thing is that I sweat from my feet more than normal. If I start exercising my back will sweat but my face will be dry which is weird but I'll take the weird instead of the blushing.
  18. 1 point
    CodeRed

    My story

    Glad to hear that you are still satisfied with your results! It's interesting how the vast majority of ets testimonials on this forum seem to be positive. But if you go to the tapatalk forums, the majority of testimonials are very negative. Perhaps it's because a lot of people on tapatalk got the surgery a long time ago? Before the surgery was more "perfected"? Bottom line is that statistics don't lie. And this study clearly shows that most blushers are satisfied with the surgery: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3244298/
  19. 1 point
    To anyone who is interested, the ETS reversal is done. You may follow up with my progress and read about my experience on the ETSandReversals website. Here is a link to the thread: https://www.tapatalk.com/groups/etsandreversals/scheduled-for-ets-reveral-on-08-31-2018-t6289.html
  20. 1 point
    Justme

    I had ETS today

    Gld to hear your doing so well Rosie happy for you. really wish i could afford get this done
  21. 1 point
    RosieFace

    I had ETS today

    2 week update - Palms are still dry and I haven't had a single blushing episode. Although I do have CS on my back and right below my breasts the pros greatly outweigh the cons. I attached a photo of what my shirt looks like after walking in 30 degree weather and a backpack on as well. The sweat stain that you see is right on my lower back area and I must also note that this shirt is very thin. The CS I had that day would only show through the tiniest bit had I worn a slightly thicker t-shirt. Humidity is the real culprit of the CS, once I step into a cool room it goes away instantaneously. The CS doesn't bother me at all its easy to cover up and it only happens when im out in the heat but even then I would say it is very mild. I feel that my anxiety related to FB is almost gone and I can speak to anyone without having to worry about turning scarlet red. My scars are healing beautifully and are barely there. If you guys would like a picture of that to see what it looks like let me know. Overall I am over the moon with the results of this surgery, I seriously feel that it has changed my life.
  22. 1 point
    Earlier blusher

    Had ETS 1 year ago. Update

    Hi all! 1 year since I did my ETS surgery now. here is a small update how I'm doing now and my experiences. Blushing: Havent blushed once since the surgery. Even if I try to blush I just can't. I have been in many 100% blushing trigger situations, but the blushing is non existent. Side effects: I am not sweating from my chest and up anymore. I see this as a good thing as I used to have alot of face sweat before when it was hot or exercising. My face skin is totally normal, not dry. I'm also not sweating on my hands. hands can be a little dry sometimes(rarely), but it's not very much. haven't even needed to use lotion on my hands. Compensatory sweating. As I live in Norway where it's pretty cold I have barely noticed any CS here. it was around 30 degrees Celsius in whole May, still no problems with CS. I do heavy weight training 4-5 times a week. a few times of had a little sweat on my back, but it doesn't bother me. it's not showing through my shirt. other people in the gym are sweating much more than me in both face and body. Only once I had a bad CS experience. in a wedding at 40 degrees celcius without aircondition. I was in a white silk shirt without anything under. the sweating on my back went through. it didn't bother me as most of the people in the wedding was sweating the same amount. Funny thing is that my face was completely dry in that heat, while everyone else face were running in sweat. a guy asked me " how can you possibly not sweat in this extreme heat?" I just answered him by turning my wet back to him I learned to put a cloth under my shirt if I'm going to a hot place in a white silk shirt? however it's rarely I'm at a place this hot. General life: Life is so much better. I got the blushing in the age of 23 and had it just 2 years before I did ETS. I regret I didn't do it just the first moment I got it. iv got a promotion at work. I have a good connection with all my colleagues. I'm social again with friends and family. I have also started my own company. My thoughts are not on blushing anymore. I still feel for you guys still struggling with this problem and I wanted to share my experience if it can help some of you take the correct decision. Feel free to ask me about anything releated to blushing or ETS. quik writing on smartphone, so might be some spelling mistakes? Peace out!
  23. 1 point
    I've been a blusher for about 6 years. Some of you may recognise me from this forum in the past as I've previously posted about the success I've had with effexor and how it has cured me of my blushing and flushing for going on 5 years now. I decided to go on effexor as I'd read about the great results people were having with it but I also want to share with you the success I had with non-medicine practices that you can implement into your life on a daily basis to help fight against blushing/flushing. The bullet points below of the techniques I used proved to be fairly successful for me in their own way and I would say overall helped to alleviate my blushing/flushing symptoms by about 50 - 60% which as I'm sure many of you can imagine, is a great help to leading a normal life again; 1. When you wake up in the morning, go for a long jog. Really sweat it out. This helps to relax your nervous system and I found that doing this helped to dampen my blushing for the first number of hours in work. 2. When you finish your jog and get home, have a warm bath and use relaxation lavendars in the water to further help your nervous system relax. Also light a chamomile scented candle beside the bath and inhale its scent while you bathe, further helping to relax your overactive nervous system. 3. Diet is very important to help alleviate flushing. Try to avoid sugar and crap food at all costs. The foods that I found helped with flushing the most were garlic, blueberries, eating a healthy salad for lunch with water, drink a cup of green tea daily and add 2 teaspoons of organic cider vinegar. Also take turmeric supplements and probiotic supplements. Drink bottled water. Avoid tap water as it's full of chemicals (I'm an environmental engineer so I know this well) 4. There is a great nasal spray that helps alleviate flushing but just be weary of rebound flushing if you suffer severe flushing. It is called "Afrin nasal spray". I used to spray it on my hands in the morning and apply it to my face. I found it helped me to stop flushing for 6-8 hours and then you can reappply it. It works by constricting the blood vessels in your face. 5. Hot Yoga is another great exercise to relax your overactive nervous system, I recommend joining a yoga class and taking part 2 to 3 times a week. 6. Antihistamines have been found to be quite useful to combat flushing. But they have to be the drowsy type ones as these are the type that work to relax your nervous system. If you are going to try these I recommend taking one twice a day and monitor the few hours afterwards and how you react in blushing situations. Just be aware they have to be the drowsy type so be careful when taking these and driving machinery/cars etc. 7. Look after your mental health, keep telling yourself that you're a beautiful creation of God and no one can change that. You care for and love people and no one can take that from you. See a therapist if you have to. The above list helped me significantly to lead a normal life and I hope some of you out there will take it on board and try it. If anyone does, can you please keep the forum updated on your progress as it may help other sufferers.
  24. 1 point
    admin

    Hello! ESFB Channel needs you help!

    Hello again! ESFB Channel still needs your help to stay active! Some of you have donated their time and money to make this community grow and I thank you very much for it. I hope you can help support this community by making a small donation. If we all chip in, we'll be able to make this website live a long life. You can click on the following link to make your donation. https://www.paypal.me/esfbgive Thank you in advance for your support. Jacques
  25. 1 point
    blushingman

    before and after blushing pics

    I just have to way in here, because I can not believe that there are negative comments talking down on people that are brave and post pictures of themselves with this terrible condition. This is not a competition about "how much of your face that is red" or "how dark the redness is". For me personally it is having to have the face change color, every day in all kinds of social situations. I would much rather be at a constant maximum flush/blush, than have the color change. It is not that the redness is "ugly" or anything like this, this is not a cosmetic problem. What is hell is having to have your face change color every day, in all kinds of situations. When giving a presentation, in a meeting, around the dinner table, introducing yourself to someone, just because you ate something, haven't eaten for a while, or one of a thousand other reasons that triggers this. Sending out signals to the world that you are a insecure person, that you are embarrassed, shy or that something is wrong. But in reality it is no other reason than that you have this skin/nerve-condition. And pretty soon things that used to be fun, or simple things like just speaking your mind about something, becomes an humiliating experience. You start to withdraw from social situations, stop saying what you think and feel, because having to feel the intense heat and get the reactions from others becomes too painful. This is such a terrible condition to have, and it's like you can not be yourself, you are a prisoner in your own body. We should work together in finding a real cure for this sh**, not talk down others who has this and compete about "who has it worse". And to be clear, even if the picture where to be of a flushing scenario, that does not mean that she can not also have the same color change when blushing.
  26. 1 point
    Very interesting James. I'm glad you found something that works and have decided to share it with the rest of us. I will look into Olanzapine next chance I get. Perhaps lying to the doctor to get a prescription isn't the best strategy though. I say that because I work in healthcare and I know that medications get prescribed sometimes for people because one of the side effects of the med is helpful to them. I think if we were upfront with the doctor and just told them about the blushing and that you have read that this medication will help, then the doctor would be able to work with you on that. It is also important to note that the FDA keeps track of what medications are prescribed, to who, and for what reason. If you tell the doctor you are hearing voices he would have to give you a diagnosis of something along the lines of schizophrenia in order to justify writing the prescription. So now your medical record states you may have a psychotic disorder and that may interfere with your life in unpredictable ways, for example by barring you from employment at certain places. I think it's best to just be upfront. Doctors are open people and generally have great judgement.
  27. 1 point
    Befree

    My story

    Hi everyone, So I'm now on my 2 year anniversary since ETS surgery.... Looking back, time is definitely on my side, although I didn't find my surgery to be a negative experience it's definitely gotten better over time. The most important thing to report is absolutely no blushing episodes at all and I cannot tell you how amazingly excited this makes me. I used to blush walking down the street passing a complete stranger that never even noticed me so to now be able to say that 2 Years on and yesterday I went to town with a packed shop and packed my bag at the check out in a busy long line queue and didn't even blush once or even feel 'heated' is absolutely astonishing! I can still sweat from my head on both sides, I still have gustatory sweating on the right side but I wouldn't say it's as bad as straight after surgery, perhaps a 40% decrease now. My compensatory sweating is either getting lesser or I'm just coping better. This year has been a massive improvement from last summer, will know more as the years go on but so far so good and things seem to be getting better or I'm just adjusting and don t see a problem. My life now isn't 100% better, it's 300, 400, 500% better. I cannot write in words how grateful I am for having this surgery and there is no way in hell I'd turn back the clock! Ok a bit of compensatory sweating is a sub but even that I'm not noticing the same as last summer now, I am absolutely on top of the world and please please if someone is out there and feeling alone, there is hope, it's a risk yes, but there is hope and do not give up ❤️
  28. 1 point
    Update: Drugs, surgery, prospects of the future and more Hi everyone! It has been some time since I have made an update. I have tried some new things, read even more and I also have not responded to everyone. This update will therefor be quite long (I probably have to put it out as several posts), but I think it will give value to people who are interested in this. 1. Afrin Nasal Spray I tried this, but it did nothing for me. 2. Botox I have recently tried out this, as there are some studies suggesting this could help. Unfortunately it did nothing for me, with neither blushing or flushing. 3. Medication I don’t have too much new information to add here. I think a combination of a small/medium dose of SSRI/SNRI + a small/medium dose of a beta blocker is the best way to go. It is not at all addictive or dangerous to use long term. And you can change or stop as you wish, until you find what is best for you. Regarding SSRI/SNRI I think you have to try out several types, since people respond different to different brands. Regarding beta blockers, both Atenolol and Propranolol works for me, and Atenolol has the least side effects. Unfortunately neither works for an entire day (Atenolol needs to be taken at least twice a day and Propranolol at least 3 times a day). I have heard of some beta blockers that is suppose to last for an entire day, like Nadolol (Corgard), but it is my understanding that it is not common to use this for blushing. I have not been able to try this out myself, so I don’t know if it would work or not. 4. Lasers I see someone asking about this. I have now had about 12 laser treatments, with the best and newest of lasers (Both Vbeam and Cutera Excel V), using the highest intensity they offer. It really does not work, and I have not talked to a single person that is satisfied with their result from lasers. At best you get a slight reduction of redness and heat of the face, but that’s it (In no way do you eliminate permanent redness, flushing or blushing). I have also visited 5 different dermatologists, and talked to even more online, to get different opinions. They all basically say the same. That KPRF, Rosacea, flushing and blushing have been studied very little, so they don’t know much about it, and that laser treatments is the newest and best solution available for killing veins in the face. Here is the thing, it may very well be the best thing available, but that does not do any good when the “best” thing available does not work at all. And the bad part is that many dermatologists market this as giving excellent result, almost praising it as being the greatest invention since fire, and showing great before and after picture. This is complete fake, and so easy to manipulate. They often show the same pictures, with patients they have not treated themselves. Also, the “before picture” may be taken right after a laser treatment, when the skin is completely flushed. When they the next time take a picture, the skin is of course less red, but this should not be credited the laser treatment. This is just a normal not-flushed vs flushed type of scenario, and has nothing to do with laser results. Also, since the body always produce new skin cells, even if the lasers would work, you still would have to keep having lasers your entire life, since you are not dealing with the underlying cause of the red skin (Just trying to reduce it superficially). Summation; lasers are not the miracle cure dermatologists market it to be. 5. Surgery I have read everything I have been able to find about the surgery for blushing, both forums (people who have had it done), what surgeons say and other medical rapports. It can be of great help for blushers, but on the other hand it is very controversial and can cause severe side effects. From all the information I have gathered, here are my thoughts: The most important thing for me if I went through with the surgery is: - Only operating at the T2-level. o This is because studies show this to be the nerve ganglia that most of the times are responsible for blushing. Also, the less nerves you operate on, the less risk there are of getting severe side effects. - Using clamps (not cut or burn). The so called ESB or ETS-C surgery. o I do not consider the surgery to be reversible, but if I got major side effects, they might be reduced somewhat if I got the clamps removed. Also, by not burning, you do not have the possibility of the heat destroying other nerves around the T2-level. - Going to a very experienced surgeon. Side effects to be expected (Basically guaranteed): - Drier hands and face. o But hopefully that it is not bothersome thanks to lotions. - Sweating very little, or not at all, over the nipple line. - Sweating more below the nipple line (Compensatory Sweating - CS). o Hopefully to a degree that is not bothersome in the day to day life, but that you sweat more for instance during exercise and in extreme heat. - Reduced heart rate - Reduced physical ability o Hopefully only to a small degree. Like you will not have the extra competitive edge that professional athletes need, but you will be able to work out at a high level. Side effects not to be expected: - Horner’s syndrome. o This is almost impossible to get with today’s methods. Using clamps, even if you clamped the nerve responsible for the eye lid muscle, you would immediately notice it and just move the clips further down. Side effects that I have read people getting, but that I consider to be unfortunate: - Severe CS - Feeling constantly tired, and also not being able to concentrate or work out hard - Being constantly, or more often, flushed and warm in the face. - Gustatory sweating - Being either very cold or very hot, and not being able to feel good because of this (Having the “natural thermostat” broken) - Super dryness over the nipple line, like very dry eyes, scalp, etc. - Wrinkles and premature aging of the face. Also, it actually is not a guarantee that the surgery will stop blushing completely, though statistically it is a great chance that it will (Around 85 % of the times in several studies, and down to 46 % per cent when long term success rates were studied). There are also studies showing that the surgery does not work well for slow increasing flushing/blushing, like when you give a presentation and remaining in a stressful situation. That it only work well for that “quick appearing blushing”, like being caught off guard. Other thoughts: - The medicine that worked the best for me was the beta blockers. A beta blocker works by calming down the "fight and flight" response of the nervous system. This is the same part you operate on when having surgery. This might indicate that the surgery will be successful. This is not a study, just a thought I had. - The surgery is extremely controversial. In Sweden, where they first started with the surgery and where they have operated over 3000 people, it now is illegal. This is because they have seen the consequence people have long term. When you decide to make a surgery illegal, after having that many surgeries done, it is not without reason. Also, there are not many surgeries who has their own websites dedicated to warn people about it (Which the ETS/ESB surgery has). Again, this is not without reason, and shows the seriousness of the possible side effects. - Some private surgeons market this to do more than what it actually does. I think everyone who have read forums like this know that the surgery is not intended for flushing, only blushing (This also surgeons, who particularly work in countries with free health care, and don’t personally gain from people having the surgery, will tell you). But this girl; https://www.youtube.com/watch?v=CUoDzb1fER4&t=2s, had a flushing problem and went to Dr. David Nielson. As she explained, she was told that the surgery would be perfect for her, but now that she has had it done she realizes it has done nothing for her. This is very sad. Everyone who have read about the surgery knows it is not meant for flushing, and there is no way a surgeon who have done many surgeries wouldn’t know that. This shows that some surgeons care more about making money, than providing the most value for their patients, and people should be aware of that. - The video above also proves that increased redness of the skin is not caused (only or not at all) by an overactive nervous system (Her nervous system is now destroyed, and the flushing is the same). When you blush your nervous system definitely gets activated, which is why the surgery can help. But I feel like surgeons at one point said, “the sympathetic system starts the blushing, so let’s just burn of the nerves and that will cure the problem”. History has shown that this is not the all time cure some surgeons make it out to be. Increased redness has to do with genes, having more capillaries than others, skin prone to reddening, and probably because of factors we do not yet know (Like maybe hormones or something completely different?). - There are 2 things I miss the most, that I not have been pursuing because of blushing, and that is getting a girlfriend and going for the career I want. If I went for the surgery it would be because I expected to be able to go for these things afterwards. When I then read about for instance @Filur explaining how he could not cuddle with his girlfriend after the surgery because of CS, and that other people still had increasing blushing in situations like meetings and presentations, this to me makes the surgery less attractive to consider (And even more of a gamble). 6. An other proof that this is a physical, not psychological, problem: https://www.youtube.com/watch?v=gSw-0UuCpNQ A video of a minister in Australia, Barnaby Joyce, who blushes on live television. As you can see in the video, he also has KPRF. The video also shows what it looks like having constant red cheeks, and how you easily therefor also have chronic blushing (And the face, but particularly the cheeks, get more red). It is particularly 2 things I take from the video: First of all I get really proud whenever I see someone with a condition you can do nothing about, who despite that go out and do their best. Second, it shows that this is not something you just go to therapy to get rid of. I don’t think this man has a problem with his confidence, it simply is that when you have chronic blushing you are going to get red when you feel strong emotions. That is how you are built. As he says himself; “I am always blushing, it is a problem”. If someone reads this, who don’t have chronic blushing yourself, I will shortly try to explain why it is bothersome: Imagine having a sign at your face everyday for your life, that can start to blink and when it happens you feel and intense heat of the face. Also, when it blinks it is socially perceived that you are embarrassed, are hiding something, are shameful or have low self esteem. Most people might just have a “big blink” once every 6 month, when they get really embarrassed. And other people can get really embarrassed, without the sign blinking at all. When you have chronic blushing however the sign starts to blink every day, just simply by feeling strong emotions. And you have no control over it. I am not saying you can’t have psychological problems as well, you absolutely can. But you don’t blush because you have a psychological problem, you get psychological problems because you blush all the time and there is nothing you can do about it. Because how should you react? It happens when you feel something, and being in social situations. And particularly in situations when you need to keep your head cool, like asking someone on a date, giving a presentation, or just having a simple discussion. Should you just laugh about yourself every time it happens (Like Barnaby in the video), even though it is not funny, you just can’t help it? Hide from the world? Of course you can try not to care about it, but it is not that easy when you everyday have a face that lights up, you feel the heat and you immediately see a reaction of aversion in the people around, and you constantly send out signals that something is wrong. 7. Illegal drugs I read on this forum someone talking about using mushrooms or marijuana for solving this. So I thought I should comment, but this is my first and last time commenting on this. The reason for this is that I have absolutely no experience of this. The second reason is that I personally think this would be going in the wrong direction. I absolutely have no judgement over the people turning to this, and I understand completely the frustration of not finding good solutions and wanting to try everything. But I think using for instance prescription drugs in cooperation with your doctor will be more effective and also a lot safer. 8. Future Prospect – Gene Technology Gene technology is actually no longer science fiction. Thanks to a newly developed method called CRISPR Cas9, it has become easy for any biologist to use gene technology (For a quick introduction video, check this out: https://www.youtube.com/watch?v=jAhjPd4uNFY). The main key is that it is possible to identify the exact part of the gene that causes an illness that is unwanted, like blindness, cancer, and illnesses that are relevant for people on this forum, KPRF, Rosacea, excessive sweating, blushing, etc. It is possible to remove the exact gene that are responsible for these illnesses, without hurting anything else! Imagine that, these illnesses have no benefit what so ever, and now it can be possible to get rid of them! Believe it or not, there are people who are against using this new technology in medicine. For our part, curing conditions like KPRF and blushing, there are two main challenges that need to be overcome. These are: 1. Not letting ignorant politicians and other negative people winning the debate regarding this technology. 2. Raising enough money specifically for finding a cure for blushing, flushing, KPRF, Rosacea, etc. As with everything else, money is what decides where the focus will be on. Other arguments in favor of finding a solution for these problems: - Even though these problems (KPRF, blushing, Rosacea, excessive sweating, etc.) are researched way too little, they are identified in the medical world as serious problems. Otherwise dermatologists would not use laser treatments for this, and surgeons would not carry out surgery for this (They even give the ETS surgery out for free in countries with free health care and it is covered by insurance in other countries, simply because this is recognized for what it is: a serious problem, not a cosmetic one). Hot flashes for women during menopause is recognized as a problem, that they are trying to cure. It is basically the same as flushing and blushing that the people of this forum is prone to, except they are lucky only to get this for a short period, whereas we have the heat and redness daily for our entire life. - An other point proving that this is not a cosmetic surgery is because of the suicides that have occurred due to the severity of the problem, combined with the lack of good solutions. Also, the fact that there are thousands of people who have had the ETS-surgery done, despite knowing what kind of side effects they can get, shows how serious this really is. If the problem just were of a cosmetic degree, there would not be a single person risking the outcomes of this surgery. One of the main arguments from critics (which are mostly super religious people) is basically that humans are the way they are for are reason, and that it is wrong to change this. I am baffled by this kind of argumentation. In my opinion, if you are going to be against medical progress, then you have to be against everything about the profession of medicine. If you believe it is God’s plan everything that happens, then you would have to stop doctors from existing, stop giving vaccines and have people die of diseases like tuberculosis and measles (Which people died of in the millions before, but thanks to research we have found solutions, and this basically no longer exists). Take KPRF, this is constant redness of cheeks (which makes blushing and flushing major problems) + bumps on the skin (Particularly on shoulders and upper-arms, which can itch a lot). Flushing and itching also get worse in certain weathers and when eating certain foods. Same with Rosacea. The redness and skin irritations is a little bit different, but the concept and the triggers are the same as with KPRF. Having these conditions does not serve either the people who has it or humanity in general anything at all. It is nothing but pain! Finding the gene responsible for KPRF and Rosacea, you could simply just remove it. Just being rid of the redness, and not having to have ETS-surgery or use meds that can destroy your health (Being rid of the exact problem, not having to get any negative side effects). Sorry for writing to this extent, but I wanted to make sure that my points came across, and that it is clear what the debate is really about. A part of the debate is that we should find out if this is a safe procedure, both now and for the future. This part of the debate I fully support, and we definitely should make sure that it is safe to use this. But another part of the debate is that some people say that it is wrong to progress with this, simply because they feel it is wrong to do something with the genes. I mean, just imagine finding the gene responsible for blindness, meaning that we have the possibility to get rid of blindness in humans forever. And then telling a blind person that we have a completely safe method in curing her, but that we feel that it is wrong and therefore we will not allow it. This is the part of the debate that I find utterly insane. If it proves to be completely safe (which it seems to be), but not using this technology just because some people do not want to do something with a small part of the genes, in my opinion is as wrong as it could get. 9. Other thoughts regarding the future If the only options that ever would be available are the once we have today (Which basically is either surgery or medications), I probably would just go with the surgery. For now, medications do work somewhat, and hopefully we will see better solutions in the future, so I am not going for surgery just yet. I must say I am totally disgusted of how few options people with this problem are faced with. No matter what you choose it involves hurting part of your health, and you just have to hope that the side effects is not as bad as the original problem. Having tried basically every possible solution there is, talked to a bunch of surgeons and dermatologists and read all I have been able to find online: The true conclusion is without a doubt that the medical field knows way too little about this (Both Chronic blushing, flushing, KPRF and Rosacea), and better solutions need to come. A problem with medicine today is that they value survival, compared to valuing having a great quality of life. For me at least, the meaning of life is living your life to the fullest and expressing all that you are to the world, not just try to survive for as long as possible. When you are not able to be yourself every day in your life, while simultaneously not seeing any chance of a solution, that is what causes depression. Even if you manage to achieve certain things, without fulfillment, that really is failure. I know for my part at least I would gladly live 50 years without this problem, instead of 150 years with this problem. A second problem is that the doctors, politicians and other people who might be against the progress of curing illnesses, have not had to deal with this themselves. They might understand that it is bothersome having a problem, but they can not comprehend what it is like living with a problem that affects every part of both the social and professional life. Thankfully there are people (dermatologists, plastic surgeons, institutions, etc.) that do have a focus of increasing the quality of life for people. I don’t have the delusion that gene technology is the absolute answer to this. It could prove not to be safe or not work well, and/or it might be a better or less invasive solution to this. I see for instance a couple of people have posted new studies being done in finding solutions to menopausal hot flashes. To me it is kind of ironic that hot flashes are being treated so seriously, and doctors do everything they can to treat this. But people with chronic blushing or flushing, who have the same symptoms their entire life (not having to endure this only during a short period -menopause), are being told to seek out cognitive behavioral therapy to learn to just accept it. This is crazy. If a doctor can comprehend that it is bothersome to flush during menopause, they should be able to recognize it for people with a skin condition who has this every day, their entire life. But anyway, the good news is that research for hot flashes might benefit chronic blushers and flushers somewhat also. Also, the combination of how many people that struggles with this + the few and terrible options available, would make the person responsible for providing better solutions a very rich person. That is a good incentive for organizations and people to invest in finding better solutions. 10. How to have new treatments available As I see it, there 4 ways of making this happen: 1. Creating awareness in the medical field about how substantial this problem is 2. Supporting new technology – being pro when voting, etc. 3. Supporting projects financially (As this will not be researched unless someone is paying for it) 4. Becoming a medical professional yourself, and being part of the research As I am not in the medical field myself, I am going to do what I can regarding the first three steps. I hope others find their best way in supporting this. 11. YouTube videos and online sites Even though we should not accept having this condition, and we need to find better solutions, I just wanted to end with some thoughts that has helped me dealing with this condition. I think part of why it becomes such a big problem is because of how misunderstood this problem is. And when you get the courage to talk to your doctor about it, since they often know nothing about it and relate it to their own normal blushing (which is not the same as chronic blushing), they often only say you need therapy. The sites I am linking really has made me care less that I am blushing. Just knowing this is a genetic condition, and that other people who has this feel the same in social situations, I feel makes it easier when for instance meeting a negative doctor (We really know more than many does on this subject). Again, I am not claiming just working on your thought process will stop blushing or not make it bothersome, but perhaps it can make easier to deal with and pushing you to live more. My personal goal anyway is to: Find the best possible solutions available (For me that probably will be medication, but every person must decide for themselves whether it is that too, surgery or something else), and then just deciding that: It is good enough for now to live my life. And if I still should blush from time to time, just thinking it is not the end of the world. Yes it is bothersome, but it does not hurt anyone. If a person feel the need to make a big deal of my blushing, that really is a shallow and negative person, and not a person I want to hang out with or take advice from anyway. Again, I am not trying to underrate the severity of chronic blushing, because that should not be done! Just reflecting on some thoughts that might be healthy to consider. There has been suicides because of this, and it’s been written in the suicide letter how it is because of blushing and that they hope awareness will arise on the matter. I fully get this reasoning. A part of feeling your life has meaning is by contributing and not just living for yourself. When you feel you can not do that alive, at least you can do it by creating awareness when killing yourself. Even though I fully get that reasoning, it is so sad and I hope the world never sees another suicide because of this condition. Something that has given me meaning (That other might copy - just glad if someone does) is: I know what a hell it is having this condition, so I am going to support new solutions to this the best way I can. Of course, the more people working towards new solutions, the quicker new and better solutions will come. But even if I never got to take part of them myself, knowing that the people coming after me would not have to go through the same suffering as myself, would make it all worthwhile. Anyway, below is some of the sites/videos that helped me: A guy shares his concrete thought process of how he managed to not care about blushing as much: https://www.youtube.com/watch?v=tmN1s2-Kxjc&t=185s A girl who talks of the problem in a way I think many can relate. I particularly like the reflection of how much she has lost out on, and that even though it is bothersome, accepting it and moving on, you can stop being stuck and live more: Video 1: https://www.youtube.com/watch?v=NKkBCmc1AJA Video 2: : https://www.youtube.com/watch?v=tO-5aV3ZwtM I just want to send a big thanks to all the people in the videos. They are braver than me, as I don’t think I myself would upload a video talking about my problem like that. But it really is helping people and also spreading awareness, so thank you! The webpage written by the parents of Brandon Thomas (One of the persons who have committed suicide because of this) together with Dr. Enrique Jadresic (A doctor who himself has suffered from chronic blushing and who has written the book; When blushing hurts). It both tries to explain how the problem affects the persons suffering from this and also showing treatment options. Every doctor who has a patient with this should have a look at the website: http://chronicblushinghelp.com/whatischronicblushing.html If you who have put the site together read this, thank you! This is the end of the update. I know it is very long, but my goal was to give as much value as I could. I hope many find something that can be useful, so that you can come closer to living your life to the fullest, while we simultaneously work out a solution, without severe side effects, that get rid of this condition once and for all!
  29. 1 point
    Befree

    My story

    Small update for those interested in my ongoing progress: Gustatory sweating now happens with chocolate, perhaps this has always been the case but with Christmas I've now noticed this side effect. Virtually no issue at all. Hands get super freezing cold to the point they can ache, given the fact I don't blush this is a welcomed side effect in cold temperatures. Goosebumps on my right side much stronger now, I can feel them and see them whereas last winter this wasn't the case. Still able to sweat all over, including forehead and hands can get clammy now. Shortly after surgery my hands were always dry (not to the point of needing cream but noticeably dryer than before ETS) Compensatory sweating, given that it's now winter here this has no effect on me, I can wear layers and go for long walks no problem. Blushing, none what so ever. I sometimes feel nervous approaching a situation but that passes once I'm 'in the moment' I am totally grateful that I no longer blush and that's the reason for my surgery. Flushing, this has again reduced significantly this winter compared to last. I can have hot meals, spicy meals and be Ina hot room all at the same time and I will barely flush at all (a 2 rating,10 being the worst) on occasions when I do start to flush if it's way too hot etc and it's effecting me, this will pass in a matter of 10 minutes when I take myself away to a cooler room. Very excited about this one as it is reducing very much as time goes on. So far I am very happy with the way my recovery is going, those early days aren't how your body will always be, I think your body needs time to adjust after surgery and mine is definitely finding new ways.
  30. 1 point
    Befree

    My story

    Oh my goodness I could not have tested myself more than I did an hour ago! Christmas shopping and I pick this porcelain ornament up, completely not realising it's head wasn't attached and what happened....yes it fell off! Smashed to pieces right smack bang in the middle of the isle! My cheeks didn't burn, I didn't shake, I didn't panic, I dealt with the situation for a number of minutes whilst the shop assistant swept the mess up with onlookers having a nosey! And you know what, I even carried on shopping in that same shop, paid for my items at the til with no worry (which, after the following event would have shaken me right up for days) and I can hold my head up high and say thank you, thank you to the newspaper for bringing ets surgery to my attention and thank you to my surgeon and thank you for everyone's support. I think my life has dramatically changed and I just can't wait to be challenged again!
  31. 1 point
    1. Has anyone had the ETS-surgery, who before only blushed in the cheeks, and now are satisfied with the result? Yes. 2. Has anyone had the ETS-surgery, and before got red and it stayed like that for many minutes (perhaps even hours)? And are you now satisfied with the result? Yes—hours was common for me.
  32. 1 point
    michael1 - let me see if I can clarify this for you: Whether it is flushing or blushing, what happens is blood capillaries in the face which dilate. Blood rush to the face, the capillaries dilate and you get more red and hot. This is why people who are able to blush, often also can have a problem with flushing, Simply because they have the facial skin for it (skin with enough blood capillaries that make the redness visible). Some people might get hot or embarrassed but it just doesn't show on them, because they do not have the skin where that is a possibility. The difference between flushing and blushing is what triggers the redness. If you are in social interactions and get red, that is blushing (internal factors, like anxiety, causes the face to get red). If you are out in the cold and go in to a hot room, and your face get more red and hot, that is flushing (external factors causes the color to change).
  33. 1 point
    Contact Dr. Neilson's patient's and they will tell you the truth - he is very experienced and this surgery was the best thing that they ever did. I spoke to a handful of them (I am not one myself), but they could not believe the person that they became after this surgery. They all had no - minor side effects. I could only imagine what my life would have been like had I had this done as a child. Seriously, call them and speak to them yourself - you will be pleasantly surprised.
  34. 0 points
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