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Topic: Fatigue (Read 2290 times) |
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greg
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Fatigue
« on: December 25th, 2002, 2:59pm » |
 
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For many post ets, fatigue has been a huge problem and of course brushed of by the ETS docs. FFSO has long asserted that ETS can be the cause of symptoms of Chronic Fatigue Syndrome as well as Fybromyalgia.Here is an interesting link for those with fatigue post ETS.
www.chronicfatigue.org/
Greg
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Tim
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Re: Fatigue
« Reply #1 on: December 25th, 2002, 7:43pm » |
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These excerpts describe my post ets condition. In a working day, I can hit a brick wall, much more severe than just tiredness. I literally want to just sleep. My ambition is severely affected. I can lose focus, not comprehending my priorities or desires. I always need extra motivation. I really had a lot of unspent energy before ETS. Now I seem to be running on fumes, I also look more to enhancers such as caffeine and sugar for a spark of energy. This is sad. Just as this doctor states, it can't be found from a physical, and adrenal response is triggered via the sympathetic chain:
Quote:Usually the first and most obvious symptom is tiredness, apparent laziness, or lack of ambition. A young person often feels as if he has some serious wasting disease. The young hypoadrenal patient usually is by nature a go-getter, smart in school, and extremely conscientious. With hypoadrenalism, he finds it more and more difficult to concentrate. The harder he tries to work, the more tired he becomes.
In middle age, the hypoadrenal person usually feels he is just slowing down, or that he is beginning to grow old prematurely. Again, he tends to push himself to added effort. Sometimes he takes special exercises or courses to stimulate mental activity. |
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Tim
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srk
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Re: Fatigue
« Reply #2 on: December 26th, 2002, 7:24am » |
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Hi Tim,
Happy Holiday's
I'm very curious about this subject, as I am studying for myself and my own situation. I have two questions. In what you posted, the doctor does not mention the sympathetic nervous system and you say that he does. Is there more to this artice?
Second, are saying that hypoadrenalism can be caused by ETS itself?
TXH,
SRK
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Tim
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Re: Fatigue
« Reply #3 on: December 26th, 2002, 9:32am » |
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Hi srk,
In the link Greg provided, click on 'The history of chronic fatigue'.
As I've stated many times also, I've lost any adrenaline rushes I used to get when I run. I think I now know why. These adrenaline chemicals they say are triggered through the sympathetic system. I'm sure this has been damaged in my body.
Tim
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greg
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Re: Fatigue
« Reply #4 on: December 26th, 2002, 10:49am » |
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SRK and TIM,
I am trying myself to tie all of this together.As we all know the SNS is directly tied to the adrenalin glands that give us the "fight or flight " syndrome.CFS is directly tied to problems with the adrenal glands.So the conclusion to me is...harming your SNS through ETS can obviously give you CFS or some of the symptoms anyway. I have e-mailed the doc who wrote these articles and will share any info I get.I am desperate to get some answers as I have not worked 6 months and my health has not improved.I have tried some anti-depressants but the one of the main side effects is fatigue, so that doesnt make sense.As the article from the link states, all medical tests usually show nothing and thats very frustrating! You dont look sick, but you sure feel like it. The best way I can describe it is...its like having a hangover everyday, minus the upset stomach.
Greg
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srk
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Re: Fatigue
« Reply #5 on: December 26th, 2002, 1:49pm » |
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Wow Guys
Sorry I didn't follow the link first. I didn't read the whole thing to see how it ties into ETS. It's very interesting and I hope to spend some time on the site tonight.
As long as we seem to be having some of the same situations, let me ask you this question. For me too...all tests are normal...except that just before the holiday's I had a "renin assay" blood test. Evidently renin is something that the adrenal gland gives off. I guess the test must not have been normal because they were planning on following up with me in 3 weeks if everything came back o.k., but they called and want to see me Monday...which is only a week?
For myself I haven't yet found anything linking ETS or specifically the SNS chain to the adrenal glands, but I have been hunting. I hadn't found that web site but will look through that.
Have either of you had a "renin assay" post ETS? Evidently it isn't a common test and they only decided to do it after the liver screen, kidney screen, every other test, piss test etc. all came back "normal" and I pushed for something?
SRK
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greg
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Re: Fatigue
« Reply #6 on: December 26th, 2002, 4:41pm » |
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SRK,
Never heard of that test...let us know more about it after the follow up. What specific problems are you having anyway?
Greg
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vangoat
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You absolutely have to hit rock-bottom to ever get to the top!
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Re: Fatigue
« Reply #7 on: December 26th, 2002, 6:15pm » |
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Just like a hangover everday, but no blessed drunken orgy to struggle to recall.
Vangoat
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DarkPrince
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Re: Fatigue
« Reply #8 on: December 26th, 2002, 8:35pm » |
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Hey guys... i'm actually gonna go get my brain waves checked out. Just a hunch i'm following on why we all are having problems with sleeping and being tired all day. I suggest that you all get checked out as well. There might be a correlation between ets and the altering of our brain waves.
I really do not know if this will lead to anything or perhaps i will end up with normal test results.
DarkPrince
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srk
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Re: Fatigue
« Reply #9 on: December 27th, 2002, 8:32am » |
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It's difficult to tell what my experiences actually are...they very greatly and I'm not sure if they are related to ETS or to the steroid reaction that I had to the steroids given post ETS to reduce inflamation of the lungs.
I had consistently high blood pressure prior to ETS. I required very little sleep and seemed to have endless reserves of energy. Not bouncing off the wall type, but if things needed to be done, I could work steadily from 6:00AM through the day, into the night and early hours next morning and it didn't effect me that much.
Currently I still have high BP, however it swings like you wouldn't believe. It can go as low as 80/60 and as high 200/160. Just like before ETS, meds haven't helped. During the day I seem to do o.k. with energy levels, but I often lack some motivation. I always get to work and don't have any real problems there. But by God I need my sleep like a new born baby. This has been hard thing for me to deal with. After getting the kids to sleep, cleaning up, putting the dogs to bed and such, I'm used to kicking back and watching Monday Night football. Not anymore...I'm asleep before the end of the first quarter.
I don't really know what the test is. I know that it measures some kind of horomone put out by the adrenal gland. I was really interested in Greg's post when he mentioned that the adrenal gland is somehow tied to the SNS. I still don't understand it, but it's giving me some directions to look in.
SRK
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greg
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Re: Fatigue
« Reply #10 on: December 27th, 2002, 2:26pm » |
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SRK,
Here is an e-mail from Dr. Poesnecker...what do you think? Is this something valid or just another doc looking to make a quick buck?
Dear Greg,
Strange to say I just had another E-Mail today from a man who also developed
Chronic Fatigue Syndrome following a T2 sympathectomy. I would advise you to
do the same thing that I suggested to him and that is to take an
Diagnos-Tech, Inc. ASI so that we may see just what has been done to the
adrenal system. You may order the test kit by calling 1-800-300-5168 or 1
215-536-8001 any afternoon Eastern USA Daylight Saving Time. Ask for
Christa. She will give you all the details. Once have this test we are
usually able to treat the individual at home by with special remedies and
monitor them by e-mail or telephone.
I would also suggest that you get a copy of our latest books on CFS. These
will give you a great deal of information on how you may help yourself.
You may order the book Chronic Fatigue Unmasked 2000 by sending $15.00 plus
$3.50 postage (or $4.50 for Priority Mail)* to Clymer Healing Research
Center, 5916 Clymer Road, Quakertown, Pa 18951 or by calling 215-536-8186
and ordering by credit card. You may also order by e-mail if you desire. For
that you need to e-mail us your credit card type, number and expiration
date. Our e-mail is secure and I am the only one who has assess to it. You
may also order the ASI test kit by this method if you desire. There is no
charge for the kit itself, but we do charge for the postage and a $30.00
dollar fee for the interpretation of the results and treatment
recommendations. After you collect the test saliva samples, you must send
them directly the to Diagnos-Techs, Inc laboratory with a fee of $99.00 (US)
for their processing.
We also have an even newer handbook on managing CFIDS called Mastering Your
Life. This work is especially recommended to all those who are under
treatment for this condition. The cost of this newest work is $10.00 plus
postage
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srk
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Re: Fatigue
« Reply #11 on: December 27th, 2002, 2:59pm » |
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LOL
Greg,
I sent him an e-mail today and got back the same e-mail minus the part about receiving another question.
I don't know...it sounds like he really doesn't know for sure. At least thats what it sounds like to me. But, you know, his test may not be a bad idea. I'm going to see what comes back from my blood work on Monday.
I would worry that this is like those old "artist tests" you know the ones..where you send them a sketch...any old sketch and they send you back a letter telling you how much potential that you have and that "qualify" to be in their art classes via mial...lol
One thing that is interesting...he must answer his own e-mail if he got both of our questions.
SRK
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vangoat
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You absolutely have to hit rock-bottom to ever get to the top!
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Re: Fatigue
« Reply #12 on: December 27th, 2002, 4:39pm » |
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I smell a rat.
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greg
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Re: Fatigue
« Reply #13 on: December 27th, 2002, 5:30pm » |
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Srk,
Here is another link about CFS tests..
http://www.cdc.gov/ncidod/diseases/cfs/defined/defined5.htm#Specifica
lly
Look under creatinine...it talks about renal function.Maybe that has something to do with your last test?
Greg
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DarkPrince
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Re: Fatigue
« Reply #14 on: December 27th, 2002, 6:30pm » |
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It's more than just the adrenal glands...... It's far more complex than just the simple conclusion that we dont have adrenaline anymore.
http://www.ndrf.org/ans.htm#The%20Adrenal%20Medulla[url][/url]
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| « Last Edit: December 27th, 2002, 6:32pm by DarkPrince » |
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